Anyone with myasthenia trait, and/or had/having IVIG

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I would like to be messaged by anyone in the UK who has been told they have a possible myasthenia, with their ME. And also anyone who has had a five day course of IVIG in UK hospital? Also, anyone who has the ghastly hot feeling when they get weak. Alot to ask sorry but feel very isolatd and freakish,
 
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