May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
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Absence of Evidence

Discussion in 'General ME/CFS News' started by Daisymay, Feb 19, 2017.

  1. Daisymay

    Daisymay Senior Member

  2. trishrhymes

    trishrhymes Senior Member

    Excellent paper from Margaret Williams. Spells out the perilous situation ME sufferers in UK are in because of actions of Wessely and pals. And suggests it's getting worse with new MUS rubbish being sold to clinical commissioning groups and DWP so we're in danger of even worse neglect.

  3. JoanDublin

    JoanDublin Senior Member

    Dublin, Ireland
    Could I ask @charles shepherd of the MEA what they are doing about this attempt at reclassifying ME?
    atleje, trishrhymes and Barry53 like this.
  4. Barry53

    Barry53 Senior Member

    A thought, prompted by this. The day will come, where irrefutable evidence of biological disease will be discovered, and unambiguous biomarker(s) will be identified ... maybe even this year, who knows. At that point the prevailing establishment will plead they did their best given the absence of evidence at the time, and cannot in any way be held to blame for the suffering and harm caused to ME/CFS sufferers. But there must now (and must have for some time) surely be a mass of empirical data giving serious cause for reasonable doubt regarding the safety of existing ME/CFS treatments.

    If you are talking about the risk of serious harm, or even death, to people, you cannot sanely argue that you did nothing because you lacked 100% proof. You instead have to work by the principle of reasonable doubt, and if the available empirical data gives cause for reasonable doubt of existing methods, then those methods must surely be urgently addressed.

    There must at the very least be a real Health and Safety issue here? Is it possible there could be breaches of Health and Safety law being committed in the UK in this regard? Or if H&S is not itself impacted, could not H&S principles be used as precedents?

    I would like the powers-that-be to ponder this: If you find yourself in a court of law sometime (maybe not so far) in the future, answering why you waited for 100% proof that people were being harmed by current treatments before doing anything, rather than considering reasonable doubt as to their safety before doing anything ... are you confident you will be able to exonerate yourself?
  5. alex3619

    alex3619 Senior Member

    Logan, Queensland, Australia
    There is already irrefutable proof of biological disease processes. What is lacking is on the diagnostic side. Also its been an historical fact that psychopsychiatry has failed to demonstrate safety, instead its regarded as not necessary, with the implied claim that obviously its safe. Of all the areas in medicine, psychiatry has probably produced the most horrors in history, and that history is continuing, though a lot of that is from failed biopsychiatry. We need psychiatry ... scientific psychiatry. Not psychobabble.

    In order to demonstrate harm it might first be necessary to objectively demonstrate diagnosis. Only then can the issue move forward. However, right now, these people face the judgement of history. I suspect, where anyone even remembers in fifty years time, these people will be considered the dangerous clowns of medicine.
    Jan, ballard, Cornishbird and 3 others like this.

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