When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS
Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year ...
Discuss the article on the Forums.

A Chinese Perspective on SEID

Discussion in 'General ME/CFS News' started by Never Give Up, Feb 27, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

    Messages:
    970
    Likes:
    4,013
    English Chinese News Service has an article on ME/CFS, they are using the name SEID. It starts out fairly well, but, moves into an estimated prevalence rate of 10-25% in 10 Chinese cities, and ends with psychogenic ideas, CBT, and GET. All the same, they are talking about it respectfully, acknowledging it being a major problem in China, and bringing it to the attention of their readers.

    http://www.ecns.cn/2015/02-25/155683.shtml
     
    jimells, ahmo and Simon like this.
  2. taniaaust1

    taniaaust1 Senior Member

    Messages:
    12,012
    Likes:
    13,040
    Sth Australia
    I guess that shows that the name change wont remove the CBT and GET beliefs.. sighs.. now 10-25% of people in cities have SEID. I think the ONLY way they will get rid of the psych beliefs attached to ME/CFS would be have actual testable abnormalities in the diagnostic critera so to turn it into a real disease...
     
    Never Give Up likes this.
  3. alex3619

    alex3619 Senior Member

    Messages:
    12,834
    Likes:
    36,435
    Logan, Queensland, Australia
    A name change was never likely to reverse psychobabble. The definition will fail unless its accompanied by a massive education program. To be fair though this is a journalist's viewpoint, and seems to conflate chronic fatigue with SEID.
     
    jimells, SOC, Never Give Up and 2 others like this.
  4. adreno

    adreno PR activist

    Messages:
    4,841
    Likes:
    11,064
    Just goes to show that they didn't read the report, which specifically disrecommends CBT/GET.
     
  5. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

    Messages:
    970
    Likes:
    4,013
    @adreno, your photo and caption made me laugh out loud, and then sort of cry. I don't know if you are an artist, the originator of this piece, but now would be the perfect time for an article displaying an artist's depiction of life with ME/CFS!
     
    Gingergrrl, ahmo and halcyon like this.
  6. adreno

    adreno PR activist

    Messages:
    4,841
    Likes:
    11,064
    No, I shamelessly stole it from a blog somewhere. Though I'm neither female, nor use a wheelchair, I think it illustrates pretty well the feeling of having ME/CFS.
     
    zzz, WillowJ, AndyPandy and 4 others like this.
  7. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,635
    Likes:
    12,502
    South Australia
    10-25%? Is this a bad translation from a tenth of that?
     

See more popular forum discussions.

Share This Page