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2012 Dr. Julia Newton research/treatment

Discussion in 'General Treatment' started by charlie1, Sep 23, 2014.

  1. charlie1

    charlie1 Senior Member

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    This PR article was posted in July 2012. http://phoenixrising.me/archives/12569

    In this article Dr. Julia Newton reported she had some ‘very exciting’ pilot data which suggests she can reverse the acid accumulations using various medications (which weren't stated).
    Does anyone following her research know if there have been any advances made since that article was written?
     
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  2. snowathlete

    snowathlete

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    There's a more recent article on PR, here: http://phoenixrising.me/archives/17009
    in which this gets a small mention again. Search for "muscle biopsy work"
     
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  3. charlie1

    charlie1 Senior Member

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    Thanks snowathlete! What a great article....very interesting!

    The 2 points I am most intrigued by are:

    1) Dr. Newton's comment " We are confident that the acid accumulation is reversible but the Action for ME funding is now directed at a 50% PhD student who is going to start looking at other drugs in this muscle system so that we can begin to tease out where the abnormality might lie and whether it is amenable to currently available drugs.

    2) In the comments section, I agree with Simon's questioning/arguing that PEM in different than the fatigue that is experienced in other illnesses. (ie, cognitive impairment, dizziness etc post mental tasks). Having answers for this particular issue/symptom would be wonderful. PEM is my biggest complaint with this illness.
     
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  4. snowathlete

    snowathlete

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    Yes it sounds like her team are still exploring this, quite enticing really - can't wait to hear which drug(s) are being looked at.
     
    charlie1 likes this.
  5. charlie1

    charlie1 Senior Member

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    Me too! Treatment for my low blood pressure and PEM can't come fast enough!
     
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  6. tandrsc

    tandrsc

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    charlie1 likes this.
  7. charlie1

    charlie1 Senior Member

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    Thanks tandrsc! I look forward to viewing the links.
     
  8. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    I think that people need to see what it is actually like to be treated by Newton, which has shocked me. See here.
     
  9. charlie1

    charlie1 Senior Member

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    @MeSci - Wow, yes, that was surprising! Thanks for tagging me.
    I never planned on seeing her but thought her research sounded promising. The search for a way to alleviate PEM continues.... :)
     

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