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  1. Mellie

    Dr. Blair Grubb- Toledo OH

    Inester, POTS was the first thing I was diagnosed with - before I or any of my doctors understood that I had ME/CFS. I also have other dysautonomia sympotms and struggle largely with gastroparesis. I have seen Dr. Grubb. I have also been to Vanderbilt as a research patient twice. Now, this was...
  2. Mellie

    Drs Klimas/Rey patients ---- recent scheduling problems?

    I have been a patient of Dr. K since Feb 2011. I called to make an appointment last Friday and was told Dr. K is not seeing patients anymore. I found the person on the phone to be curt, unfeeling, with no knowledge of how alone we as CFS patients already feel. I fully expect that Dr. K would...
  3. Mellie

    Equilibrant

    Clive, Mij and PWCalvin, Thank you ALL for your input. I am increasing to 2 tabs tomorrow and very happy to get all this input. I will be spacing the doses as you have all suggested.
  4. Mellie

    Equilibrant

    Thank you very much for your input Inester!
  5. Mellie

    Equilibrant

    PWCalvin, Clyde and others who are a few months ahead of me on this... when you have increased from 1 tablet - do you take the full dose you are one all at once? Or do you spread them throughout the day? I can't find any info on this. My update after a week. I did 4 days of 1/2 a tablet. At...
  6. Mellie

    Equilibrant

    Thank you to everyone for sharing their experiences. I have started Equilibrant today. Just took my first 1/2 pill. This is my second try at an antiviral/immune modulator. I have been taking Immunovir for a year now. I'm waiting for results to see if there is any significant improvement in...
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