• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    I cannot move my Tongue and Swallowing is difficult

    Hi there Andrew, Sorry to hear of your serious issue! I am an SLP who has had CFS/ME in the past- the one that WarriorseeksPeace mentioned. I'm not a specialist in swallowing, but there are some general things to know. I did not get to read this post until today, my apologies!!It sounds like...
  2. K

    GcMAF trial

    Hi Joanee! How is GcMAF treating you? How long have you been on it? Cheers.. PS I'm being tested with De Meirleir for xmrv and also genotype response for gcMAF...what evidence do you know of so far that it's working? If it is!!! Peace:) Kara
  3. K

    Comment by 'karbyjoy' in 'Who will set the universe straight?'

    Hi Carla (and Warrior;)!) Thanks for all your sharing. Thanks for your concern for your fellow-sufferers. It's good to hear truth shouted out sometimes!! Are you still on GcMAF? How is it going? Waste of time, were you 'genetically compatible'...Please update us as you are able... I'm...
    • karbyjoy
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