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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. T

    Charcoal increased my energy immediately - what does this mean?

    'Link', I meant, not 'line'.
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    Charcoal increased my energy immediately - what does this mean?

    That's a really good line for SIBO info! Thanks
  3. T

    Charcoal increased my energy immediately - what does this mean?

    I think it's highly likely that it is to do with mold. I was living in a water damaged building for a few years and was sick and getting sicker while I was there. It took me a long time to see that it was the damp building causing it - my GP kept telling me it wouldn't be. In the end I had...
  4. T

    high MCH with normal B12 and folate

    Thank you, I think I will trial each of them and see what happens.
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    high MCH with normal B12 and folate

    It's great you persisted yourself to get such a good result. I have to say - and I should be used to it by now, after years of this - but it still surprises me how little doctors know a lot of the time. I had a doctor want to take my thymus out a few years ago and luckily I did quite a bit of...
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    Charcoal increased my energy immediately - what does this mean?

    I wondered if that might be the case, suspected as much.
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    Charcoal increased my energy immediately - what does this mean?

    Thanks, Patti. Yes, vicious circle, that is for sure. And yes, as you say, charcoal is known to work immediately. I guess I'm just wondering what the toxins are that it seems to be soaking up. I was also just reading that some bacteria produce toxins.
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    high MCH with normal B12 and folate

    Hi, It looks like there is quite a bit on the forum about MCH already. My levels are high but my B12 and Folate are normal, so I assume those supplements won't help. Does anyone know much about this? Thank you.
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    Charcoal increased my energy immediately - what does this mean?

    Hi, thank you for replying. Yes, I also wondered about placebo effect, but actually I didn't expect it to work. I was so surprised. I think the improvement was within half and hour or so, so not completely immediate, but it was significant. I thought it was odd too, which is what made me...
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    Charcoal increased my energy immediately - what does this mean?

  11. T

    Charcoal increased my energy immediately - what does this mean?

    Hi, thanks for replying. I have been so unsure as to whether to investigate SIBO. It has been mentioned it to me and I've read a bit about it... so much competing info. My mainstream GP says it's not a thing... but I know people have gotten qutie a bit better through being treated for it...
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    Charcoal increased my energy immediately - what does this mean?

    Ah, that is interesting to know that you saw a fast improvement when you took it! Yes, I also am not sure how long I should take it for, but will see how it goes. I will read about lipopolysaccharide, thanks. Seems it can cause constipation, which no doubt doesn't help gut issues at all...
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    Charcoal increased my energy immediately - what does this mean?

    I've been pretty much unable to do anything for the last 6 weeks - bad crash - last night after doing some reading online about mould (I got very sick while living in a water damaged house) I came across this idea of binders. I hate some activated charcoal on the shelf, which I'd never tried...