• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

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    Explaining CFS Symptoms to Well People

    I do tell people I have ME and think it's up to them how they take it. No one can ever imagine what it's like, I try to explain by saying imagine flu with a hangover and running a marathon in a lead suit! Well that's pretty much how I feel. It is a lonely illness as so hard for people to...
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    Explaining CFS Symptoms to Well People

    Hi I'm new to and totally get where you are coming from. I've had it 18 years but can't believe how long you have had it for! I just get by, I don't work, don't go out much, and basically just exist, not living. I would love to do simple things but even going on holiday scares me. Catching bugs...