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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. LSLJ

    Sussex ME/CFS

    Hi guys, no these two replies are the only ones I've had. Now I have just completed my CFS sessions at the Sussex CFS/ME clinic. I do feel I have more tools to help me with and more awareness and acceptance which I didn't have at the beginning. I've recently had a cold though and chest...
  2. LSLJ

    Low cortisol

    Thank you I'll check him out.
  3. LSLJ

    Sussex ME/CFS

    Hello All, I'm new and wanted to introduce myself. I've been 'diagnosed' with ME for the last 3 years and off work for pretty much that time now. No matter how much rest or sleep I get I cannot get well. Fibromyalgia symptoms and constant colds and flus and generally feeling run down no matter...
  4. LSLJ

    Low cortisol

    Thank you so very very much I will have a read through the links. Definitely sounds right for my symptoms and how I'm feeling.
  5. LSLJ

    Low cortisol

    Can you please let me know what tests you suggest I ask for by my GP and do you know of a specialist doctor based in London or England that you'd reccommend as I've been misdiagnosed for Addisons twice although my symptoms match?
  6. LSLJ

    Low cortisol

    Thank you!!!! Everything you've just written describes me. I also was re:tested for addisons at hospital at 8:45am - they just did one blood test. Wild this suffice? They ruled out Addison's and then had no answers and didn't keep testing. My energy levels follow that pattern. What country are...
  7. LSLJ

    Low cortisol

    I knew something wasn't right as my energy was low and my digestion was poor - but no doctor could find anything stand out in my blood tests so nothing was done. I did get much worse after a kidney infection and taking antibiotics, they made me feel very ill and so the doctor took me off them. I...
  8. LSLJ

    Low cortisol

    I had a blood test that had low cortisol. The doctors originally said I had Addison's disease and for the 6 weeks I was waiting to see a specialist I believed I had Addison's and needed cortisol injections. Once the specialist said I did not have Addison's they pretty much turned a blind eye...
  9. LSLJ

    Is VEGA testing in any way useful?

    I was bedridden, thinking my life was over. In constant body pain and unable to even stand long enough to make a cup of tea. A friend of mine said they knew a doctor locally I Sussex, England where I live that they'd heard had 'cured' patients with ME/CFS and as my GP and many others had said...