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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Did you have a vaccination not long before developing ME/CFS?

    As you say, CFS won't be diagnosed until 6 months. MMF won't be tested until 2 years have passed since the last vaccination. Muscle weakness and fatigue are common symptoms of a Hep B vaccination, but are temporary in most cases. My first symptoms started 6 weeks after vaccination, with fatigue...
  2. M

    Did you have a vaccination not long before developing ME/CFS?

    I know of one doctor in the UK who has tested for, and diagnosed, Macrophagic Myofasciitis. This is in the south west of England. I have heard of a couple of other doctors in the UK, but their experience of the illness may be limited. I discussed MMF with my GP. He had never heard of the...
  3. M

    Did you have a vaccination not long before developing ME/CFS?

    With Macrophagic Myofasciitis, patients have a delayed onset of ME/CFS following vaccination. The average timescale for the onset of symptoms is 3 months post-vaccine for cognitive impairment and chronic fatigue, followed by 10 months for the onset of muscle pain. In epidemiological studies, 50%...
  4. M

    Tenofovir (Viread) / Raltegravir (Isentress) Cures ME/CFS Patient Sick for 20 Yrs + Tenofovir Poll

    I developed ME after Hepatitis B vaccines. I was diagnosed with ME by a doctor at a clinic specialising in ME. Following the ME diagnosis I had a muscle biopsy last year, which confirmed Macrophagic Myofasciitis (MMF). This is caused by aluminium hydroxide in the vaccine. Research in France...
  5. M

    Tenofovir (Viread) / Raltegravir (Isentress) Cures ME/CFS Patient Sick for 20 Yrs + Tenofovir Poll

    I've been on tenofovir daily since 2008. I developed ME in 2014, so I have been on tenofovir throughout the whole of my ME. It has not made any difference (good or bad) for my ME symptoms, and I have no side effects from it.
  6. M

    Did you have a vaccination not long before developing ME/CFS?

    I developed ME/CFS 6 weeks after a Hepatitis B vaccine. I was diagnosed with Macrophagic Myofasciitis (MMF) following a deltoid muscle biopsy. Typical MMF symptoms are muscle pain (worsens after exertion), chronic fatigue and cognitive impairment - identical to ME/CFS. MMF is caused by the...
  7. M

    What induced your ME?

    Hepatitis B vaccines caused my illness. I started having mild symptoms six weeks following a vaccine in 2010, but didn't link it to the vaccine due to the time delay. I had a booster vaccination in 2014 and my symptoms worsened considerably 10 weeks post-vaccine. I had a muscle biopsy last...
  8. M

    Hepatitis B vaccine and ME/CFS - US court case

    I'm in the UK. I developed CFS/ME 6 weeks after a HepB vaccine. My symptoms were mild and intermittent for 4 years, and neither myself nor my doctor considered the vaccine as the cause. I then had a booster HepB vaccine and 10 weeks later my symptoms became severe and persistent. It was only in...