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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Demepivo

    Pharmalogical activation of AMPK and glucose uptake in cultured skeletal muscle of ME/CFS patients

    *In the Newton paper it mentions studies which have shown ATP is lower in muscle cells taken from ME/CFS patients. *Think of AMP as used up ATP. M stands for mono-phosphate. ATP has 3 phosphate groups hence the T for Tri. *Phosphate groups are broken off from ATP releasing energy, so it...
  2. Demepivo

    Pharmalogical activation of AMPK and glucose uptake in cultured skeletal muscle of ME/CFS patients

    There is a transcript of Chris Armstrong's Stanford presentation here along with various diagrams showing healthy & low energy states https://www.melbournebioanalytics.org/metabolism-chris-armstrong-written-transcription/ "AMPK (adenosine monophosphate-activated protein kinase) is important to...
  3. Demepivo

    Pharmalogical activation of AMPK and glucose uptake in cultured skeletal muscle of ME/CFS patients

    PDF of the full paper http://www.bioscirep.org/content/ppbioscirep/early/2018/04/12/BSR20180242.full.pdf
  4. Demepivo

    Pharmalogical activation of AMPK and glucose uptake in cultured skeletal muscle of ME/CFS patients

    Recent article in Science magazine about Metformin trials with Lupus To treat some diseases, researchers are putting immune cells on a diet http://www.sciencemag.org/news/2018/03/treat-some-diseases-researchers-are-putting-immune-cells-diet
  5. Demepivo

    Pharmalogical activation of AMPK and glucose uptake in cultured skeletal muscle of ME/CFS patients

    Brown AE1, Dibnah B1, Fisher E1, Newton JL1, Walker M2. Author information 1 Institute of cellular medicine, Newcastle University, Framlington Place, Newcastle upon Tyne, NE2 4HH, United Kingdom. 2 Institute of cellular medicine, Newcastle University, Framlington Place, Newcastle upon Tyne...
  6. Demepivo

    Fatigue after sleep

    The groggy feeling after sleep normally comes if you wake up in deep sleep...You wouldn't normally go into sleep after 15 minutes except you seem to!
  7. Demepivo

    David Tuller: My brief encounter with Prof Crawley

    Mark Payne the pyschologist will tackle any ailment under the sun, ME/CFS part of a very ling list. Possibly a member of Esther's BACME group for CBT/GET professionals
  8. Demepivo

    David Tuller: My brief encounter with Prof Crawley

    Mark Paine would appear to be this chap, a CBT counsellor. A Masters' in Psychology but does not appear to have any formal medical training. http://www.counselling-directory.org.uk/counsellors/mark-paine
  9. Demepivo

    Esther Crawley - talk 17th Nov Mood disorders Centre, Exeter Uni

    While we're waiting. Any kebabs on the go?
  10. Demepivo

    Esther Crawley's BristolTEDx talk video (Nov. 2, 2017)

    It's apparently 1 hour 30 minutes in
  11. Demepivo

    Unrest event for medics in Sheffield

    @CarolB well done for your efforts in Sheffield :)
  12. Demepivo

    Esther Crawley TEDxBristol Disrupting Your View Of ME

    FWIW I've got some Tweets written & saved via Buffer to go live just before EC's talk >using hashtags #TEDxBristol & #DaretoDisrupt which the organisers are suggesting.
  13. Demepivo

    Unrest event for medics in Sheffield

    *The event is free but donations are welcome with proceeds going to Sheffield ME Group *The Panel for the Q&A consists of: Chair is Dr Liz Walton - an academic GP with an interest in ME/CFS Dr Charles Shepherd - Honorary Medical Advisor to the ME Association Victoria Strassheim - ME/CFS...
  14. Demepivo

    Crawley lied: No harassment reports (Bristol University)

    Adam Lowe has published a piece in Vada magazine about the subject http://vadamagazine.com/news/esther-crawley-claims-harassment-university-no-record
  15. Demepivo

    Crawley lied: No harassment reports (Bristol University)

  16. Demepivo

    Crawley lied: No harassment reports (Bristol University)

    A Tymes Trust Freedom of Information request has revealed no reported harassment of staff by a third party (not connected with University) 2010-2017 ie Esther Crawley never reported any cases of harassment to her university. http://www.tymestrust.org/pdfs/noharassmentbristol.pdf
  17. Demepivo

    25 Oct E Crawley speaking at Better Science Better Data event......

    @Yogi Will start a new thread on this :)
  18. Demepivo

    ME on BBC news this morning

    Yes, 3 hours 53 minutes in. Hopefully somebody can record the clip and save for posterity w as it's only available for a day on the BBC website. Good work Jen & @charles shepherd ! :)
  19. Demepivo

    Esther Crawley TEDxBristol Disrupting Your View Of ME

    This is a great letter. Thank you for taking the time to write it from everybody in the patient community
  20. Demepivo

    25 Oct E Crawley speaking at Better Science Better Data event......

    It came across as confused babbling...
  21. Demepivo

    25 Oct E Crawley speaking at Better Science Better Data event......

    Some thoughts but on the EC performance 1 she looks stressed out of her mind 2 the attempts at flirting were cringe worthy 3 the audience seemed to be more interested in cake than her
  22. Demepivo

    Can anyone recommend a good P.O.T.S. specialist in N West England please? And P.O.T.S./OI experience

    You're welcome. Have orthostatic intolerance myself so happy to share resources. :)
  23. Demepivo

    Can anyone recommend a good P.O.T.S. specialist in N West England please? And P.O.T.S./OI experience

    As some background Dr Peter Rowe John Hopkins Children's Centre for CFS in the USA gave a talk on Orthostatic Intolerance/POTS at the September CMRC conference. Would say it's worth a watch.
  24. Demepivo

    UNREST screening and reception at the Speaker's House, House of Commons

    Thanks to you for all the great work you & colleagues have done in recent months. It is appreciated even if we are all a bit curmudgeonly on this forum sometimes :) Also Sarah & Andy Reed would make extremely good trustees if the MEA is on the look out for any. Both are well connected...
  25. Demepivo

    UNREST screening and reception at the Speaker's House, House of Commons

    There is an MEA write up of the screening on their website by Charles Shepherd. http://www.meassociation.org.uk/2017/10/me-association-review-of-unrest-in-parliament-i-cannot-recall-a-parliamentary-meeting-where-we-have-had-so-much-genuine-interest-in-mecfs-26-october-2017/ The MEA did well...
  26. Demepivo

    Petition: Debate in Parliament the lack of an effective policy for the treatment of M.E.

    Agree, it's complementary. Sarah Reed knows Ian Gibson well. Her husband was a colleague of his when they were both MPs. Hopefully he is involved in the current lobbying of MPs.
  27. Demepivo

    Petition: Debate in Parliament the lack of an effective policy for the treatment of M.E.

    @charles shepherd Is there anything you are able to add at the stage?
  28. Demepivo

    Petition: Debate in Parliament the lack of an effective policy for the treatment of M.E.

    The reason behind of the Early Day Motion (EDM) signed by 60+ MPs & the parliamentary showing of Unrest was to lead to a debate. The next stage is to organise the debate. Senior figures such as Steven Timms, Vince Cable, Ed Davey and Nicky Morgan are involved. The Unest showing took place in...
  29. Demepivo

    Esther Crawley TEDxBristol Disrupting Your View Of ME

    The organiser's response to patient concern on Twitter
  30. Demepivo

    Esther Crawley TEDxBristol Disrupting Your View Of ME

    Tweet from Jon Wilcox asking organisers to put on a counter speaker or show Jen's TED talk.