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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Belbyr- Thanks for your candid answer. You will probably be attacked by many on this thread who have been brain washed into believing what they have been told
  2. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Lastly someone replied to my posting on another forum and they have taken the words right out of my mouth. "The reason for that is that IgenX tests have no accepted norms. In the mid-1970s, the FDA began exempting certain diagnostic tests from its approval process. Many of these tests —...
  3. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    IreneF - You beat me to it - http://www.medpagetoday.com/InfectiousDisease/GeneralInfectiousDisease/57044?xid=nl_mpt_DHE_2016-03-31&eun=g883540d0r Why I want to be 100% certain I have Lyme At the end of the day, with all the confusing information out there about Lyme, all the arguing, what is...
  4. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Kina - I appreciate your balanced reply. For the record I do believe Lyme is a disease its a case of believing the severity and how many people genuinely have it. So having reached out to other forums it has become clear that once your 'results' are provided by IgeneX then you must seek a 'lyme...
  5. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    A thoughtful thread on this subject by centered educated people http://www.lymediseasesupportnetwork.org/t/igenex-testing-whats-the-deal/251
  6. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    I have posted extensively on the NDPH threads. I stopped posting on this thread and it was not going anywhere. I posted the same on a similar site and have gained lots of useful insights and follow up leads. http://www.healingwell.com/community/default.aspx?f=30&m=3785976#m3785976
  7. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    sarah darwins - I was unaware (naive) that the results would not be a real diagnosis like all the other blood work I have had in my life.
  8. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Velentijin - MS/ME are certifiable recognized illnesses across the medical fraternity. Lyme is not.
  9. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    IreneF - I am not surprised by this statement.
  10. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Valentijn - Actually its quite the opposite. You realize conditions like 'lyme' and 'fibro' did not 'exist' until 30 years ago. It just seems to be a bit of a racket - charge and obscene amount for a couple of blotter tests - then can only be evaluated by a 'specialist' who charges an onscene...
  11. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Do you think that Lyme could actually be The Mindbody Syndrome (TMS) https://www.hypnosisalliance.com/articles/Chronic%20Pain%20And%20Lyme%20Disease%20-%20John%20Sarno.pdf This would fit in nicely with the fact it is impossible to test properly as it could be psychosomatic.
  12. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    You sound like an ideal recruit for IgenX! Answers without any solution!
  13. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    this is sounding like a total scam. So a 'lyme specialist' doctor will make an analysis of meaningless test results go through your symptoms and give you a 'diagnosis....'
  14. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    So basically it can be either way. What a pointless waste of money on my part.
  15. M

    Igenex Full Results came in - No Help from them (borderline scam?)

    Dear All, I know these threads are populated with IGeneX posts but having just done my results with them I think this is a bit of a scam tbh. They said I 'might' have Lyme lol - You couldn't make it up really. When I called them actually give direct answers to the results they wouldn't give me...