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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. E

    Plaquenil - Possible eye-side effects

    Update. So my vision had become normal shortly after writing the last post. Started Plaquenil again. Big improvement again, but the blurred, hallowish vision returned. I don't know what to do. During my last post I was sure it was not Plaquenil, now doubting again. What to do?!
  2. E

    Plaquenil - Possible eye-side effects

    5 days since my last pill and my visual problems aren't improving, on the contrary. I think it was not related to Plaquenil at all. I am taking many supplements (SIBO, Candida) that lower glucose levels. I am also dizzy, so most likely it's related to low blood sugar-levels and low blood...
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    Plaquenil - Possible eye-side effects

    adamslamb said: ↑ Two weeks ago I became 80% or more blind because of the Plaquenil. I am 62 and had a complete opthamology exame the first week in June. I was blind in one day on July 24th, same year. No advance warning at all....I just lost my sight in one day. I understand it is irreversible...
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    Plaquenil - Possible eye-side effects

    So I've started Plaquenil 200 mg for a little less than a week ago. Sore throat improved, cystitis/prostatitis/urethritis almost disappeared, brain fog improved. However, I am experiencing blurred vision. Plaquenil is redflagged for its retinopathy side-effect, but I am reading that this is...
  5. E

    Why do I feel sick after water exposure?

    I have the a very similar problem, exactly the same instances. The only difference is symptom-wise. My main ME problems (sore throat, brain fog, urinary infection) get worst the second day after the water exposition.
  6. E

    Oxymatrine in Europe.

    Hey there, Where to get the oxymatrine in Europe? Are there any alternatives out there apart from biomed in the Netherlands?
  7. E

    Staph vaccine to treat CFS??

    It's true. In the very beginning, I would feel awesome upon taking the shots, immediately. However, I became slightly worse after a couple of weeks of doing so (can't remember when exactly), and I got slightly worse overall ever since. I can't tell for sure if it had something to do with the...
  8. E

    Staph vaccine to treat CFS??

    Yes, he works at the clinic - he has been around Pf. Gottfriess since 1998 - so he knows everything Pf. Gottfriess does/knows. I even got to see this legendary man (the professor) for a couple of seconds during my last visit to the clinic in August. :)
  9. E

    Staph vaccine to treat CFS??

    Interesting info. Olof Zachrisson is my ME doctor. He's a quite interesting person, unfortunately he can't prescribe ANY treatment/medication at all. He also dismisses all the (other) possible infections as a ME cause (Lyme, EBV, Coxsackie etc)
  10. E

    Peptide Bioregulators - Anyone tried them?

    These peptides claim to ''restore, correct'' various systems. - The nervous system: http://rupharma.com/cerluten/ - The immune system: http://rupharma.com/vladonix/ - Adrenal glands: http://rupharma.com/glandokort/ etc. Anyone that has any experience of these products...
  11. E

    Staph vaccine to treat CFS??

    Maybe because of, as we talked, my CFS is primarily related to the immune system disfunction. I do suffer from brain fog, memory impairment and anxiety/depression, but they all decrease when my infection/inflammatory levels are kept at bay.
  12. E

    Staph vaccine to treat CFS??

    A little update: It's been 2 weeks since I started the vaccine. I've injected myself three shots so far: 0,1 - 0,2 - 0,3. The first week on the first shot was superb, especially the first 2 days. No sore throat, sinuses cleared up, no chills, no sweating, slight brain fog, no more white...
  13. E

    Ehrlichia/Anaplasmosis natural treatment Protocols

    By the way, Would you mind writing down his recommendations for Rickettsia, as well? Both the natural and pharmaceutical ones. :)
  14. E

    Ehrlichia/Anaplasmosis natural treatment Protocols

    Thank you millions again! 7-14 seems of course little. I've been on Doxy for 10 days before and while it did help, I'd always relapse after finishing it. So I need at least 4 weeks I've read a bit about chloroquine and it's perceived as a dangerous drug, that could cause deafness and other...
  15. E

    Ehrlichia/Anaplasmosis natural treatment Protocols

    It was Elispot + CD57 cell count
  16. E

    Ehrlichia/Anaplasmosis natural treatment Protocols

    Fantastic info, @Dufresne! Thank you! Yes, that is what many people told me too, so I feel like I ''won the lottery'' by ''just'' getting this co-infection and not Babesia and/or Bartonella. Those are hardcore. I would much appreciate if you wrote the pharmaceutical protocol too. :)
  17. E

    Ehrlichia/Anaplasmosis natural treatment Protocols

    Hey Hutan, Thanks for your answer. I got tested positive for Ehrlichia/Anaplasma both through Arminlabs and Dark Field Microscopy. Also for Borrelia through the same procedures. I do believe one of these two or even both are the main cause of my CFS, as I have a good improvement-response on...
  18. E

    Ehrlichia/Anaplasmosis natural treatment Protocols

    Hey, I've been looking online and I couldn't find much info about natural protocols against Ehrlicia and Anaplasmosis. Anyone that has any idea/experience about it?
  19. E

    Nimodipine (Nomitop) - has anyone tried it ?

    I've tried it myself for 3 months. No serious and sustainable improvement noticed.
  20. E

    Staph vaccine to treat CFS??

    I got hold of the vaccines today. Tomorrow I'll have my first 0,1 ml shot.
  21. E

    Nimodipine (Nomitop) - has anyone tried it ?

    Hvac14400, Please write a PM to me. I wanted to address you, but you have no active function for that. Please. It's an urgent matter
  22. E

    Borrelia positive through Arminlabs. I am positive or not?

    No, I haven't got tested for them yet, but I will do so. I am especially interested in Babesia, as it explains my symptoms most. And the way I see it, in my possible case of Lyme, it's mostly the co-infections that are active, not Borrelia itself. I got tested for Borrelia and other 6...
  23. E

    Borrelia positive through Arminlabs. I am positive or not?

    4 years, since 2012. But as I stated previously, I react positively to antibiotics. There is this post I've made a last week, I think. http://forums.phoenixrising.me/index.php?threads/why-do-antibiotics-help-most-of-us.43949/ So maybe it's true - I am a Lymee. Does doxaxycline target...
  24. E

    Borrelia positive through Arminlabs. I am positive or not?

    I am confused about whether I should stop my CFS cause hunting and start dealing, living and treating Lyme or continue looking for it. Either way it's a tough ride.
  25. E

    Borrelia positive through Arminlabs. I am positive or not?

    Hahaha, it was a figure of speech.
  26. E

    Borrelia positive through Arminlabs. I am positive or not?

    Oh, I am more confused than ever. God bless us
  27. E

    Borrelia positive through Arminlabs. I am positive or not?

    No Mycoplasma and Chalamydia Pneumonie, even though tested positive? I know that it's not really important treatment wise, as they all respond to doxycicline, but both Chalymdia Pneunomie and Mycoplasma describe my symtoms better than Borrelia
  28. E

    Borrelia positive through Arminlabs. I am positive or not?

    Yes, but I don't want to spend my life in treating Borrelia to no avail, or to believe I have Borrelia when my problem in reality could be a virus. plus that antibiotics are not really ''vitamins'' to your body either :)
  29. E

    Borrelia positive through Arminlabs. I am positive or not?

    As you can see, I am really confused. Dr. Armin is sure I have Borrelia. 2 facts straightening this are: 1) The low CD57 count in the absence of CPn and Mycoplasma bacterial activity. 2) My response to antibiotics. 2 facts that counterargument Borrelia hypothesis: 1) The relatively low...
  30. E

    Borrelia positive through Arminlabs. I am positive or not?

    I just took Elispot + CD57 count tests