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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Multiple Sclerosis

    It’ll be hard convincing my doctor to give me antivirals for long term therapy if he’s convinced EBV isn’t what’s bothering me. In fact he’s convinced this is all in my head (even though I’ve never been an anxious or manic person). I only started feeling this way because my symptoms are real...
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    Multiple Sclerosis

    Jim, You mentioned treating your gut for symptoms you’re having currently. I believe the same. I think the answer is in the gut and the healthier it is the less your symptoms will crop up. What do you do for your gut health?
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    Multiple Sclerosis

    No he didn’t. He didn’t feel as if there was anything wrong with the results. I was so happy I didn’t have HIV I didn’t inquire about anything else I just ran home and cried.
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    Multiple Sclerosis

    Hi Rob, When the infectious disease specialist took my blood the only thing that came back was extremely high antibodies to EBV. They were called EBNA I believe.
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    Multiple Sclerosis

    I’ve never done an MRI as I thought the issue would be found within my blood. It didn’t occur to me I might have MS until I kept hearing it coincide with constipation, which is a symptom nobody else I’ve known with CFS has said they have. Constipation is really common with MS as the muscles that...
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    Multiple Sclerosis

    Actually Jesse I’ve never thought of that. Wouldn’t my immune system have had to been compromised as well for an infection like that to take place? Now that I think about it she had mentioned having had surgery in her mouth from a tooth she had to get pulled.
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    Multiple Sclerosis

    Hi Jim I don’t know if what I have is CFS. If I sleep enough I feel rested...not like before but not extremely exhausted. I weightlift 4-5x per week, although recovering has become a bit tougher with my new work schedule. It’s the PAIN and constipation that is debilitating. I ignore it as much...
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    Multiple Sclerosis

    Hi Guys, I posted about my story a while back regarding a sexual encounter I had after which I've never been the same. The symptoms that have persisted over the course of two and a half years are: muscle twitching all over, pain that radiates from my legs to my arms to my hands, cognitive...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Hi guys, Still experiencing symptoms two years later. Random joint pain all over and constipation. I think I may have multiple sclerosis. It is the only disease that I see that fits every single category of what I've been feeling.
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Hey guys, Still experiencing symptoms. They'd gone away for about 2 weeks and came back strong I feel like I'm crashing. I really have a blood flow problem. When I lean my elbows on my knees they go numb and fall asleep immediately. I have a lot more Grey hair now. What the hell is wrong with me??
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Hip you've truly helped me out so much with my understanding of these viral infections and I appreciate you doing that so much. I'm very confident that I will eventually get better and that my body is right now fighting very hard to stay functioning and I've got to try everything in my power to...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    I definitely don't have the resources to go and see Dr. Chia. I'm only 23 and pretty much support myself so flying to California is out of the question... So basically if I do have this there's very little working treatments and if that doesn't work I just have to live like this? I'm at a loss...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Also just wanted to add I have been tested for Lyme and it's negative. I live in the city in NYC so I don't think it's even likely I have Lyme. Someone mentioned that people with HIV are more likely to carry other things due to lowered immunity--I had a theory on that when I first got sick and I...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Okay, now I'm really glad I joined this board! After reading the information on Hip sent me I found this website : http://www.enterovirusfoundation.org/symptoms.shtml The list of symptoms on there read like a timeline of my history so far. I truly do believe I have some sort of enterovirus...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    I would say that my anxiety set on right after because the woman was confirmed to have HIV, but my symptoms definitely set on just about 3 days later. What's interesting about what I've been reading in the information you gave me is the part about the sinuses being affected. I forgot to mention...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    The symptoms of that virus are very similar to what I've experienced, but it makes me anxious to think it could be that or EBV. I was sort of set in stone that it's EBV. No one in my family has gotten sick from me and my new girlfriend has been completely fine
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Guys, I sincerely thank you guys for replying back on this post. I've been fighting this thing for about a year and a half now and I'm only 23. Nobody thinks I'm sick because I look fine, however my mental and physical stress is real. I'm very tired of being in pain and not being able to do the...
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    HIV EBV STORY--Please GIve Me Your Thoughts

    Hello, I'm new to the boards and wold like to share my story to garner some opinions as I'm new to all of this. A year ago I had a sexual experience with a woman I later found out to possess HIV. This event happened the day before thanksgiving and my symptoms set on almost immediately after...