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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. mirijam

    I have got the diagnosis CFS, but..

    My English is too bad to answer you in the way I would like to :/ but it´s right now one and a half year ago since the diagnosis of depression and psychosis. I feel better and better with time. If I stop using the medication, I get all of the symptoms again.. if I take it again, everything is...
  2. mirijam

    I have got the diagnosis CFS, but..

    No I didn´t say that..
  3. mirijam

    I have got the diagnosis CFS, but..

    I had first kissing disease. I believe it was insidious with the depression and psychosis
  4. mirijam

    I have got the diagnosis CFS, but..

    It´s right, I wasn't enthusiastic about getting healthy again. the only thing I wanted at this moment was getting healthy. that was my only wish. after suffering so bad..
  5. mirijam

    I have got the diagnosis CFS, but..

    ..I am fully recovered right now!!! It was a psychologically problem. Last year from February on I stayed 4 months in bed. I can´t went to toilet, I can´t bare light and noises, I can't moved out from bed. I was in a very bad state. I had very bad physically problems. Then I went to hospital in...
  6. mirijam

    Overwhelmed

    hey guys. Haven't seen the newest replies until yet. got no email?! Just want to tell, the print on chest comes from my stomach. If I take gastroprotection it's fine. It makes sense, because I eat everyday at 10 am. The swallowing is getting better now (I believe this is neurological, got other...
  7. mirijam

    Overwhelmed

    this could be a problem, because I can't talk more than a few sentences a day :( yeah temesta is for panic attacks. I know panic attacks for years, but never had them at the same time of day? maybe an extremly anxiety automatic running progress?
  8. mirijam

    Overwhelmed

    Since weeks I feel so terrible overwhelmed everyday at the same time (10 am - 3 pm). Even if I do nothing the whole day. Like a clockwork.. At first there is a print on chest and then the overwhelming feeling is coming slowly and gets stronger and stronger with every minute. If I do nothing (no...
  9. mirijam

    Where can I buy LDN without a filler?

    @ahmo this is what I've done
  10. mirijam

    Where can I buy LDN without a filler?

    For sure this solution can be diluted, why not..I should know these things as a chemist..but most of the time I feel like this
  11. mirijam

    High heart rate during night and in morning

    What I know..The body stops the estrogen production with taking the pill. The estrogen you get then, came from the pill. I notice again and again, if I take it, my palpitations are going better (but unfortunately no longer disappear). and if I stop taking the pill they are going to be so...
  12. mirijam

    Where can I buy LDN without a filler?

    @Hip I'm starting to believe it..because I respond to so many drugs in the same way. I don´t know if it´s coincidental or there is something in it, I can´t tolerate. @ahmo hehe we wrote already, maybe it´s just normal, we will see. @CantThink this is interessting!! Do you think it´s possible to...
  13. mirijam

    Low dose Naltrexone

    Oh tiredness, I see. Will take it more longer and hope this getting better. and should take it in the evening I think.. thank u :)
  14. mirijam

    Low dose Naltrexone

    0.1mg LDN makes me really tired. could this be normal?
  15. mirijam

    Where can I buy LDN without a filler?

    I read that there are some companys, who sells LDN in a liquid form or as powder without a filler. But can´t find one, who sells to europe.
  16. mirijam

    High heart rate during night and in morning

    Same problem..every time I wake up my heart is racing. I have palpiations during the whole day (feeling my heartbeat), but I can deal with it, except in the morning.. It began when I stopped taking the pill..
  17. mirijam

    Valtrex dosage

    same thing with famvir. Still feel improvement, but couldn´t even tolerate ~60 mg of it. I despair :(
  18. mirijam

    Valtrex dosage

    And do u think that a herxheimer reaction could be possible at just 500 mg? It doesn´t felt like the typical side effects, I just felt really bad in strange way..I can´t even describe it
  19. mirijam

    Valtrex dosage

    Thank u for your response :) This is a good idea, I will increase it more slowly now..500 mg at once was definately too much. I felt so incredible horrible later, never want to go through this again.. I try to take 250 mg for a few weeks now and if I´m fine and not getting this feeling again, I...
  20. mirijam

    Valtrex dosage

    Hey guys, I´ve got the me/cfs diagnosis with possible ebv-activation. So I started Valtrex 4 days ago. The first two days I only took 250 mg (cut a pill in a half) and didn´t feel any side effects so far. Yesterday I increased it to 500 mg. After that I feel dizziness for 2 hours, but it was ok...