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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Christina

    Working With Chronic Illness

    Therese Borchard doesn't have CFIDS -- she has the also very challenging illness of manic depression. But I found many parallels to my own situation, and much inspiration in the interview I did with her for Rosalind Joffe's Working With Chronic Illness blog: Therese Borchard struggled with...
  2. Christina

    Seeking Your Life/Work/Disability Stories

    I'm writing a memoir on life with "this thing" -- and as a former financial writer with a specialty in personal financial planning, I'm looking to come up with some legitimate financial strategies for the chronically ill. If you are interested in sharing your story and and any solutions you've...
  3. Christina

    The Gupta Program and XMRV: discussion

    It Makes Sense ... That anyone who's made a living by marketing a push-button cure to CFIDS is going to try to adapt the new retrovirus discovery news to his program. If you look at Dr. Teitlebaum's similar pooh-poohing of the new discovery on Psychology Today's blog -- you'll see similar...
  4. Christina

    Do CFS Patients Ever Get TRULY Well?

    Work is the test The lady who was a homemaker before and after CFS doesn't really have the right to say she was "cured." I don't know about anyone else -- but cognitive difficulties stop me from doing a full-time white collar job. So anyone with lingering cognitive problems, who's not...
  5. Christina

    Comment by 'Christina' in 'The ME/CFS advocacy conundrum'

    Well -- I guess one think I can do is join the MAD advocacy group here -- never give up!
  6. Christina

    Comment by 'Christina' in 'The ME/CFS advocacy conundrum'

    Hi Michelle -- I've been off the boards for several weeks and just catching up with the Hillary Johnson/Kim Kenney mudslinging on the other board. I've pretty much been a dues paying CAA member for at least ten years - even though I've always had issues with them. I get my discomfort with the...
  7. Christina

    R U Amygdalized?

    I Share Your Fears I also have/had the same experience -- ignoring the body -- overdoing and having a replapse. To be honest -- back in December when I first started doing the program seriously, I had a totally no CFIDS health issue. I got a foreign object in my eye. It was excruciating. I went...
  8. Christina

    R U Amygdalized?

    Interesting hypothesis Cort -- I'm interested in this hypothesis -- about the damage starting in the amygdala. I think a lot of us had a brain infection at some point -- and this is where the cognitive difficulties start. The brain can slowly heal itself. Very likely, the Amygdala response...
  9. Christina

    R U Amygdalized?

    Amen! I do want to add -- Ashok's program really is very helpful in improving quality of life. He has on his site and on You Tube short clips comprising the first DVD (of about 6, I think) and you can see he's not a Snake Oil Salesman. Also -- he says give it six months. I always need two...
  10. Christina

    R U Amygdalized?

    I'll repeat my story, posted as a comment to Cort's interview with Ashok: http://aboutmecfs.org/blog/?p=495 Hey all Full disclosure Ashok sent me a set of the DVD gratis, on the understanding that I would blog about it, and as its been six months the recommended time to become fully...