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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. JCastro

    Help with Genes, Intolerant of Methyl-B12/SAM-e, Freddd

    Ok, I've jumped into AdCbl, 10mg Source Naturals. Doing okay so far, sitting in my lip. My vasoconstriction/dilation and brain hypoxia symptoms are very tricky, elusive. I do not know if I need lots of potassium, lots of salt, or both. I could be low adrenal, and a bunch of potassium could give...
  2. JCastro

    Help with Genes, Intolerant of Methyl-B12/SAM-e, Freddd

    Hi Eastman. Both are in bad shape, in fact. I think due to mercury, but (Cutler) chelation alone is not sufficient treatment as I'm sure you know. I felt so much better last year while on the Freddd Protocol. Like night and day. Despite having detoxed less mercury. I would LOVE to slam a bunch...
  3. JCastro

    Help with Genes, Intolerant of Methyl-B12/SAM-e, Freddd

    Few more things. Lately I sleep 12-17 hours a day. A nap for me is 8-10 hours. I wake up exhausted. My circadian rhythm does not work. My current schedule is wake up 9pm-12am, sleep around noon. If I force myself to stay up into the next day to normalize my sleep, I just sleep into the next day...
  4. JCastro

    Help with Genes, Intolerant of Methyl-B12/SAM-e, Freddd

    I'm suffering badly. I am 20 years old. This is disheartening, but I have been beaten up and traumatized so bad for so long I am used to it. Would bad reaction to magnesium indicate hypokalemia? I think so. Magnesium induces air hunger. So, I need potassium, huh? When I take potassium, I get...
  5. JCastro

    Help with Genes, Intolerant of Methyl-B12/SAM-e, Freddd

    @caledonia, I am definitely going to keep it low for now, titrating up as I can. I have spent much of today reading over Freddd's posts and I am torn between the excitotoxic hypothesis vs. the neurological brightening hypothesis. One thing is for sure: I need the supplements, because since I...
  6. JCastro

    Help with Genes, Intolerant of Methyl-B12/SAM-e, Freddd

    Freddd's protocol helped me for a while with many things. I did high dose methylcobalamin, methylfolate, and adenosylcobalamin with co-factors. Eventually one day, I went into a severe agitation/rage/excitotoxic state after taking 30mg b12+30mg folate, 10mg adeno and 200mg of SAM-e. I was...