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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Giardia poll

    February 8, 1991 First clear CFS symptoms. May 10, 1991 First GI symptoms which continued until about 1995 when I finally gave up all physical exercise. October 28, 1991 Giardia screen (EIA). Negative. January 15, 1992 B. hominis found. February 8, 1992 B. hominis found.
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    Chronic fatigue syndrome after Giardia enteritis (Naess et al., 2012)

    Blastocystis hominis http://en.wikipedia.org/wiki/Blastocystosis "Blastocystis is a protozoal, single-celled parasite" "Variation in severity Researchers have sought to develop models to understand the variety of symptoms seen in humans. Some patients do not have symptoms, while...
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    Lyme in Australia???

    mea culpa My previous link wasn't related to the TV segment. Sorry. Here is a link that offers more info: http://campother.blogspot.com/2012/02/lyme-disease-in-australia-on-today.html
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    Lyme in Australia???

    Whole paper here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3258014/?tool=pubmed
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    Site similar to PR fo Lyme disease?

    From their pdf: 80% sensitivity is quite common for Western Blots. Of course "well characterized samples" are always used. Don't know what these people are using.
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    Site similar to PR fo Lyme disease?

    http://www.lymeneteurope.org/forum/ http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/ http://www.healingwell.com/community/default.aspx?f=30 And other lyme sites I visit daily: http://spirochetesunwound.blogspot.com/ http://lymemd.blogspot.com/...
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    Given Dr Lerner and Montoyas findings, why arent a subset of us getting treated now?

    So based on the data in Table 2, I probably was EBV positive on 8/23/2007. Better yet I was also EBV positive on 10/04/1993, 2 years and 7 months minus 3 days after clear onset of symptoms. Perhaps I should research how many doctors I have seen! Less clear the HHV-6.
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    Mitochondrial Dysfunction

    I have believed for 20+ years that my CFS was mitochondrial!
  9. C

    Enough XMRV

    Then don't visit XMRV forums. Or you could delete the bookmark(s) to forums/blogs/web sites that include the term "XMRV"!
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    Phylogenetic analysis of MLV sequences from longitudinally sampled Chronic Fatigue Sy

    So where is the " Phylogenetic analysis of MLV sequences from longitudinally sampled Chronic Fatigue Sy" discussion? Posts several paragraphs long, totally off-thread. Page after page. Attack. Counter attack. Counter-counter attack. etc Usenet Newsgroups were almost worthless back in...
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    Negative XMRV study - blood/brain/semen of Autistic Individuals

    You did not include the complete quote for your second example. (Don't know why you bold quotes don't show up. Don't care why.) So you distort the author's conclusion.
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    new XMRV research (talks about prostate cancer but mentions EBV promoting XMRV

    Lyme and NFKB? I CAN ONLY offer this up to those of you with brains that still function. http://www.ncbi.nlm.nih.gov/pubmed?term=NFkB%20lyme The antibiotics doxycycline and minocycline inhibit the inflammatory responses to the Lyme disease spirochete Borrelia burgdorferi. Abstract...
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    Clongen Labs currently offer a test for the presence of XMRV by Real Time PCR.

    My bad! I ass-u-me-d that it was now 2010 rather than 2011 and so this is year-old news!
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    2 Doctors taking ARVs for CFS

    Monday January 17, 2011: Chronic Fatigue Syndrome, the XMRV Retrovirus and Human MLV-related Viruses Gordon Medical Research Is Proud to Host Dr. Judy Mikovits, PhD Co-author of the seminal 2009 paper "Detection of an Infectious Retrovirus, XMRV, in Blood of Patients with Chronic Fatigue...
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    Clongen Labs currently offer a test for the presence of XMRV by Real Time PCR.

    http://clongen.com/XMRV_PCR_Testing.php
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    Lyme Disease and XMRV

    Hanta When I was in Japan - '53 to '55 - a scary mystery disease was known to be sickening/killing GIs in Korea. Twas Hanta. Been causing humans problems in, at least, Korea for a very long time. Chucknberkeley
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    Using the Brain to Fight Fatigue

    When I was running trail races (distances to 100 miles) I regularly used will power to countermand fatigue signals generated when muscle glycogen was almost all gone. If one learns to listen their body they can develop a feel for approaching muscle glycogen depletion. And when liver glycogen...
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    Cheney on Gut Dysbiosis

    Bold added. Don't believe anything is absorbed in the stomach. Most absorption takes place in the small intestine From Wikipedia;
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    Treating Lyme Disease (Jernigan)

    Two of the three browsers I use regularly, iCab and Safari, suggest there is Malware on the site. http://google.com/safebrowsing/diagnostic?tpl=safari&site=pics.bubbled.cn&hl=en
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    Suprise of the Reno Conference- a key to pain and fatigue in ME/CFS?

    From Wikipedia:
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    Gene Signature for Post-Infections CFS

    Interesting! One small step forward.