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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. southernwonder

    Comment by 'southernwonder' in 'Things people say to people with ME that don't help and sometimes discourage.'

    It is so difficult when people say those things. I want to smack them but offering my pain to God is a much better response :)
  2. southernwonder

    Chronic fever

    ukxmrv thank you for the info. I'll look into the exercise info. Valentijn I didn't realize GET was harmful. That was my plan to increase my fitness. The fevers are measurable with a thermometer.
  3. southernwonder

    Peripheral Neuropathy

    I have peripheral neuropathy in both feet which started this year after an incidence of swelling. I didn't know it could be related to CFS. I take gabapentin for it and it works nicely. What could I be taking to repair the nerves, as the gabapentin makes me groggy?
  4. southernwonder

    Chronic fever

    I was diagnosed with CFS about one year ago after seeing multiple specialists for a chronic low grade fever. After all tests were negative, I was given a CFS diagnosis after researching the illness and speaking to my doctor about it. I have many of the other symptoms and was diagnosed with...