Just had a quick scan of the thread.
Sorry, didn't realise it started with DT vs EC (more great sport!).
What it has morphed into all sounds quite familiar.
As a taster, here's the latest on my son's paediatrician:
http://www.bbc.co.uk/news/uk-england-devon-39329907
With all due respect to Jane & Nigel (TYMES Trust), they are thinly spread and can't engage directly in every case. Their support for us over the phone and by email was way beyond the call of duty.
I would like to volunteer to be the appointed advocate for this case. No one needs to know that I have ME...lol, no one could prove it anyway.
I am MD of a community interest company and have a degree in applied sport and health science (personally, I am skeptical about the ATP theories, but mito dysfunction may well be a factor).
If I can be of service, it's quite good timing for me. Please do ask.
I'm not religious, but when my family went through this, our advocate was the son of the Archbishop of Canterbury.
It's always good to network.
Have you ever thought that esther crawley is synonymous with smelly bug?