@Nielk I was curious, did your doctor(s) decide not to do the maintenance infusions b/c you had total B cell depletion from the initial two infusions? I have heard mixed things re: this issue (and I do not know the answer and assume it varies from person to person)? My main doctor said that it is possible that I will have total B cell depletion from the first infusion of Ritux (before even doing the second) but that I will be doing the second one regardless (unless I cannot tolerate the first one and then I won't be).
He initially said that maintenance infusions were not necessary if you maintain total B cell depletion from the two infusions (and that we'd be doing serial B cell testing to monitor this). But after discussing it further, there seem to be
studies (I have no idea which ones?) that imply that if you are going to have a remission, then the maintenance infusions prolong the remission and add value (even if you are already B cell depleted). Did your ME/CFS doctor or your RA doctor have any thoughts about this? Thank you in advance for any info.