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If doing this, I wouldn't just concentrate on national groups. There are also lots of local support groups with mailing lists, Facebook pages, et cetera.Are there any - perhaps especially UK based - charities that could do a email-shot to their subscribers, that haven't already done so? Even if they do not feel it's appropriate to donate.
Excellent interview with David Tuller from ME Action. Really spells out the level of his ambition in demolishing PACE and all its influence.
http://www.meaction.net/2017/06/08/...ace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71
Has anyone started writing to groups to ask them to highlight the appeal and/or donate? I'm afraid I have too much on.This also appears to be a good list of support groups for UK and Ireland:
https://www.mesupport.co.uk/index.php?page=uk-republic-of-ireland
in fact this seems to be a good online resource..........not heard of them before.
From their homepage:
"My name is Louise Sargent and I launched M.E. Support in 2001, having been living with Myalgic Encephalomyelitis for nine years, in a bid to raise awareness and help fellow sufferers. This is a UK-based website providing worldwide information to hundreds of thousands of visitors each year. I manage M.E. Support daily with the help of a small but invaluable team of Volunteers. I have also been able to expand offline, such as advising the media on M.E. and guiding medical professionals."
Excellent interview with David Tuller from ME Action. Really spells out the level of his ambition in demolishing PACE and all its influence.
http://www.meaction.net/2017/06/08/...ace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71
Why is that a problemThe problem is knowing which groups are BPS supporters and which are not; maybe a separate thread?
A separate thread might be good.I have emailed Louise Sargent of ME Support.
I don't know if #MEAction are doing anything along these lines? @L.A. Cooper
The problem is knowing which groups are BPS supporters and which are not; maybe a separate thread?
I am just wary of
a) being identified as being one of the 'vocal minority' to those who support PACE etc
b) the emails being used against David Tuller/the cause generally...........(eg un-solicited requests for donations etc etc).
I am just wary of
a) being identified as being one of the 'vocal minority' to those who support PACE etc
b) the emails being used against David Tuller/the cause generally...........(eg un-solicited requests for donations etc etc)
Excellent interview with David Tuller from ME Action. Really spells out the level of his ambition in demolishing PACE and all its influence.
http://www.meaction.net/2017/06/08/...ace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71
Lots of appeals have already been written on social media e.g. Twitter, Facebook, etc. As long as the wording was not over the top, I doubt an email to groups requesting they consider donating to the appeal and/or circulating the appeal to their contacts would cause many problems.b) the emails being used against David Tuller/the cause generally...........(eg un-solicited requests for donations etc etc).