I hope it's ok I post. I posted on the introductions board and had a nice response.
I've been ill for a year with crashes, chronic fatigue daily etc.. gp found nothing but an undercative thyroid but that's treated and within range now. Yet I continue to feel unwell. Gp ran a lot of bloods in November but found nothing, he ruled out autoimmune conditions, anaemia, glandular fever etc.. he said that would confirm I was dealing with cfs that had started after a lot of stress in my life. I have anxiety and ptsd since being attacked late 2012 by my brother and suffering from abuse from my extended family for refusing to forgive and accept my brother back in my life.
Over the last year I daily feel fatigued, breathless and fast heart walking just upstairs, daily I feel woozy in my head and just generally tired. A crash though happens if I have any emotional stress (if extended family members contact me for example) or if I over exert myself.
Yesterday I had energy and after 2 weeks of constant fatigue where I couldn't open my eyes, I was happy so I walked my dog, did house work, drive the kids to school, showered, cooked a big breakfast... and that was all by 9.30am. I then felt very sick and weak. Heart was racing. I had to rest. At 2pm stupidly because I felt a bit better I decided to put the washing away. 10 minutes into doing it I felt so weak all over, heart was racing, legs weak and felt rubbery, a feeling I was dropping through the floor and cold feeling. Across my upper back was aching and I just found it too tiring to breathe. Out of curiosity I took my blood pressure and it was low 90/58. My norm is about 105/65.
I had to rest all night and today I'm feeling much the same. This is what happens when I crash, I struggle to even walk to the bathroom due to how weak and rubbery my legs feel. I feel I'm sinking or feel faint as I walk like the body is dropping but it's not. Cold feeling, heart steps up and just an awful weak feeling and I need to sit down asap. This type of crash can be a 10/10 severity where I can't even shower or like today this has been an 8/10, I managed a shower but felt exhausted. I've barely functioned today, have been downstairs twice and both times had all the symptoms I mention above.
Is this typical cfs but without heavy eyes and tired head? For 2 weeks recently I daily had fatigued eyes and hale as but no severe weakness, that type of crash is rare but it was horrible fatigue where I could sleep all day feeling. But the crash I have now is my more common one and yes I feel tired but more the body symptoms.
Can anyone relate and reassure me the way I feel is normal for cfs? I can have weeks of no crashes like this, in fact I've not had this type of crash in a month but day to day I feel exhausted easily and woozy. I tire very easily so have to do short trips out and pace. If I don't pace then this type of bodily crash hits but it also hits if I speak to my mum or anyone from my traumatic past.
Sorry this got long. My go has not been very good and hasn't officially diagnosed me, he has seen me in a crash many a time and blames anxiety, mood or a virus lol! Now he's worrying diabetes or something despite bloods all being fine for the things he suggests. Then other times he's sure it's cfs. Another go said it was very much like cfs. I've been coping alone with this for 18 months and that's why these crashes scare me so much.
Thank you
Julie
I've been ill for a year with crashes, chronic fatigue daily etc.. gp found nothing but an undercative thyroid but that's treated and within range now. Yet I continue to feel unwell. Gp ran a lot of bloods in November but found nothing, he ruled out autoimmune conditions, anaemia, glandular fever etc.. he said that would confirm I was dealing with cfs that had started after a lot of stress in my life. I have anxiety and ptsd since being attacked late 2012 by my brother and suffering from abuse from my extended family for refusing to forgive and accept my brother back in my life.
Over the last year I daily feel fatigued, breathless and fast heart walking just upstairs, daily I feel woozy in my head and just generally tired. A crash though happens if I have any emotional stress (if extended family members contact me for example) or if I over exert myself.
Yesterday I had energy and after 2 weeks of constant fatigue where I couldn't open my eyes, I was happy so I walked my dog, did house work, drive the kids to school, showered, cooked a big breakfast... and that was all by 9.30am. I then felt very sick and weak. Heart was racing. I had to rest. At 2pm stupidly because I felt a bit better I decided to put the washing away. 10 minutes into doing it I felt so weak all over, heart was racing, legs weak and felt rubbery, a feeling I was dropping through the floor and cold feeling. Across my upper back was aching and I just found it too tiring to breathe. Out of curiosity I took my blood pressure and it was low 90/58. My norm is about 105/65.
I had to rest all night and today I'm feeling much the same. This is what happens when I crash, I struggle to even walk to the bathroom due to how weak and rubbery my legs feel. I feel I'm sinking or feel faint as I walk like the body is dropping but it's not. Cold feeling, heart steps up and just an awful weak feeling and I need to sit down asap. This type of crash can be a 10/10 severity where I can't even shower or like today this has been an 8/10, I managed a shower but felt exhausted. I've barely functioned today, have been downstairs twice and both times had all the symptoms I mention above.
Is this typical cfs but without heavy eyes and tired head? For 2 weeks recently I daily had fatigued eyes and hale as but no severe weakness, that type of crash is rare but it was horrible fatigue where I could sleep all day feeling. But the crash I have now is my more common one and yes I feel tired but more the body symptoms.
Can anyone relate and reassure me the way I feel is normal for cfs? I can have weeks of no crashes like this, in fact I've not had this type of crash in a month but day to day I feel exhausted easily and woozy. I tire very easily so have to do short trips out and pace. If I don't pace then this type of bodily crash hits but it also hits if I speak to my mum or anyone from my traumatic past.
Sorry this got long. My go has not been very good and hasn't officially diagnosed me, he has seen me in a crash many a time and blames anxiety, mood or a virus lol! Now he's worrying diabetes or something despite bloods all being fine for the things he suggests. Then other times he's sure it's cfs. Another go said it was very much like cfs. I've been coping alone with this for 18 months and that's why these crashes scare me so much.
Thank you
Julie