Got this in an email from Solve this morning:
SMCI said:Advocacy in Action: SMCI goes to Washington
Next week, our president and CEO, Carol Head, accompanied by advocacy and engagement manager, Emily Taylor, will be traveling to Washington DC for over 20 congressional meetings on Capitol Hill to fight for dollars and action for ME/CFS.
SMCI has invited several members of the board of directors, representatives from #MEAction, MassCFIDS, and individual advocates as well to join in this collaborative effort to prevent ME/CFS programs from being cut and secure additional funding for improved federal action.
In addition to meeting with key members of the Senate and House Appropriations committees, the SMCI advocacy team will be sitting down with key agency officials from the NIH, Office of Women’s Health, and Chronic Fatigue Syndrome Advisory Committee to communicate the needs and expectations for action in 2017.
These actions will lay the foundation for upcoming big actions in May and June.
If you are interested in being a part of the May ME/CFS Advocacy week in Washington DC or taking local actions in your home district, click here to sign up to receive more information.