As ME sufferers, I'm sure almost everyone here struggles trying to be just believed or understood by friends and family who sometimes even deny that we are sick at all or that ME actually exists. I propose, as an interesting experiment, to do this:
-first tell them the main symptoms of ME, the suffering ad disability it causes, and he fact that is for life and there's no treatment, cure, or support from the state.
-secondly, tell them that anybody can get ME and it's actually quite common, there's usually a trigger, and that there are reported cases where a BLOOD TRANSFUSION has caused the onset of the disease. Also, tell them that recently it has been found that cells of normal people put in the serum of people with ME start to malfunction in the same way as the ME sufferers ones, and that serum is a part of blood, received in blood transfusions.
-explain them that any person with ME can donate blood as long he doesn't have aids, hepatitis or other common diseases screened at blood banks.
NOW THE FUN PART:
- ask them this simple questions: you don't believe in ME, but, would you be willing to receive blood from me if you need it? yo can even escalate this and tell them that if they required blood you COULD ACTUALLY, IN REAL LIFE, provide blood from them without them even knowing and without their consent, as blood banks do not care who the blood comes from as long as it passes their test, and blood can be donated to a specific person in need if you ask for it when you donate it. For example, if your cousin is in the hospital and blood of your type is being requested for him, you can go to the hospital and offer your blood specifically for him. This last part means that the person with whom you're doing this experiment will be now aware that at some point of his life, HE COULD RECEIVE YOUR BLOOD, the blood of somebody who supposedly has a made up disease...
I'd do it with some people and post the results here, would you wish to do the same? I believe the results could be enlightening
-first tell them the main symptoms of ME, the suffering ad disability it causes, and he fact that is for life and there's no treatment, cure, or support from the state.
-secondly, tell them that anybody can get ME and it's actually quite common, there's usually a trigger, and that there are reported cases where a BLOOD TRANSFUSION has caused the onset of the disease. Also, tell them that recently it has been found that cells of normal people put in the serum of people with ME start to malfunction in the same way as the ME sufferers ones, and that serum is a part of blood, received in blood transfusions.
-explain them that any person with ME can donate blood as long he doesn't have aids, hepatitis or other common diseases screened at blood banks.
NOW THE FUN PART:
- ask them this simple questions: you don't believe in ME, but, would you be willing to receive blood from me if you need it? yo can even escalate this and tell them that if they required blood you COULD ACTUALLY, IN REAL LIFE, provide blood from them without them even knowing and without their consent, as blood banks do not care who the blood comes from as long as it passes their test, and blood can be donated to a specific person in need if you ask for it when you donate it. For example, if your cousin is in the hospital and blood of your type is being requested for him, you can go to the hospital and offer your blood specifically for him. This last part means that the person with whom you're doing this experiment will be now aware that at some point of his life, HE COULD RECEIVE YOUR BLOOD, the blood of somebody who supposedly has a made up disease...
I'd do it with some people and post the results here, would you wish to do the same? I believe the results could be enlightening