Dear NelliePledge,
There is no reliable evidence that antivirals are of any use in ME. We have no evidence for persistent viral infection in ME and I would be prepared to bet that if further trials are done they will come out negative. Nobody would save any money by allowing the use of antivirals - it would be money down the drain. I doubt you could get antivirals on public healthcare in Canada or Australia. Private practitioners will prescribe them and insurance schemes may be persuaded to reimburse almost anywhere. Even in the UK some NHS consultants will bend the rules at times but as time goes by I think they are realising it is a waste of time.
We all have chicken pox virus latent within us after our first infection but that has nothing to do with ME a far as we know.
There are huge problems with the NHS - but they are financial limits the apply to all areas. We also have problems with poor science on the CBT front but that is another issue. I have some sympathy for GPs if they get fed up with patients asking for drugs that don't work!!
Yes i dont understand how they speak so sure about this, its the first time that some speak so strongly against Antivirals for Me.
There is evidence that even when coventiinal comercial blood test show past infections for this herpes viruses they mat still be active and shading.
Im a great example of that Dr Edwards, my comercial test for EBV show past infection, two doctors, a very smart doctor in new york and well know doctor at nova university both agree EBV could be active and shading in cfs in a diferent way than normal idividuals, since this test are comercially designed for people with normal immune systems, the immune system is not normal, is disfuntional and deficiency in most cases.
They were 100% right after sending my blood to an infectious disease lab in New jersey "boom EBV EBNA was positive in IgG IgM" most labs on the EBNA only do IgG..
Not only Montoya, Klimas, Vera, Pridgen, many Well know Doctors believe in the antivirals.
I really dont know in what do all you guys saying this base your argument.
I havent read about this anywere.
Beside the fact that many people have respond and improve on antiviral is strong evidence of antiviral meds do work.
We have both, patients on antivirals that who knows if they also have any effect on lowering retroviral viral load, there is also many people on retrovirals using viread and insetress or travuda that hace improved alot almost to remition, either for he retrviral effect or the anti viral anti herpes effect, this part is unclear but curcunstacial evidence suggest that antivirals have a potencial good effect on ME/CFS.
You guys can argue this as much as you can but there is no evidence either way, but the fact that many people have mayor improvements on it point to that direction.
Maybe most severly illl dont respond thesane, maybe the viruses or retrovirus or whatever the pathogen may be it has far done far more madage and harder to reverse.
I did great in valtrex!
My Me is 80% better, symtomes are 80-90% better.
Me EBV EBNA that originaly show negative in comercial test and later positive a week later with positive EBNA IGG IGM, after 8 month on valtrex show negative in both and symtomes improved 80-90%???
How so you explain that?
I may be the exeption??
I dont think so.