Wow. This is heartbreaking.
This is very comprehensive and powerful article.
Very much worth reading.
Read here:
http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html
excerpt:
This is very comprehensive and powerful article.
Very much worth reading.
Read here:
http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html
excerpt:
The puzzle solver
A researcher changes course to help his son
By Tracie White
Photography by Timothy Archibald
For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison.
He doesn’t eat. An IV line delivers nutrients and liquids and medicines to keep him alive. He doesn’t speak. He’s unable to write. Any motion exhausts him. Eye contact hurts him. He can’t bear to be touched.
Last December, in desperation, he used Scrabble tiles to communicate, laboriously lining them up to spell out: CANT TAKE CARE OF MYSELF; DONT KNOW WHAT TO DO. At the end of the month, emaciated due to his inability to digest food, he selected five final tiles and spelled out: D, Y, I, N, G. Then he rang a bell for his father...