SOC
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My daughter and I have the ICC defined illness. She has gone from about a 5 to 9.5 on the PR scale. I've gone from 1 or 2 to 6 or 7, both of us under the treatment of ME/CFS specialists. So it's possible for some of us, at least, to get significant improvement. Our improvements were not natural fluctuations in the illness. We were getting worse before treatment, improved with treatment, stay generally improved on treatment, and regress when we stop treatment.Hmmm...I'd like to know what they are (for CC definition ME). And how to disentangle the effects of treatment from natural fluctuations of the illness. But this is getting this thread off topic.
I agree this is OT for the thread, so we can quit here. I just wanted to make sure that other patients know that improvement is possible with the right treatments for the particular patient. There is hope for a better QOL.