'Hello everyone,
I'm new here and wanted to reach out and say hello. Unfortunately I've had CFS now for more than 3 years, and am also suffering from chronic depression. The depression has improved in some ways. But everything is always a struggle now. I used to love playing video games a lot but because of CFS sometimes I just don't have the energy to play them (does anyone else get that a lot too?). Even watching TV Shows can be a struggle for me as well depending on how tired I am feeling at the time. And then I have days where I feel good, but I still don't feel like doing anything (depression). It is a vicious circle!
Sadly I've been off work now since the end of 2012 due to these conditions. It has been a very frustrating time and I'm amazed at the fact that I've already lost a friendship over it because this person completely downplayed my illness. They should never have included "Fatigue" in the title of this disease. Normal people truly have absolutely no idea what it is that we go through. And I suspect a few of my friends have their doubts about me as well and will probably think that I'm "over-reacting". One of my friends even asked me not long ago how is the job front going? because yeah, I am totally well enough to work right? /sarcasm. I swear you tell a lot of people what it is we suffer with and it goes in one ear and out the other, even with our closest friends and family. I also had another friend who I've parted ways with now (over a separate matter) who also came over one afternoon and made a comment about how he thought I'd be looking for a job already.
Sadly I've learnt to keep CFS to myself these days. Sometimes I still slip and let a few people know what exactly it is that I suffer with. But mostly I keep it completely under lock and key because I don't need to be judged by other people. What the f**k do they know right? why should I have to defend myself and put up with bullshit from people when I already feel miserable most days. Oh yeah and all the advice that comes along with telling people about your problems. Have you tried this? have you tried that? well don't you think I've already tried everything because I have a computer and internet at home and did research because I want to feel better? christ this really angers me.. anyway it is pretty sad though that I feel I have to hide my illness now. It is easier to just tell people that you feel okay or not too bad and not bother letting them know what is really going on.
My Dietician said there is a 50/50 chance the GAPS diet may fix my condition as my stomach bacteria test was one of the worst he's seen. I plan on seeing a Naturopath as well who successfully treated a friend's chronic depression. I figure I may as well give it a shot now that I'm off anti-depressants as they were giving me bad reflux (I'm still having it). Plus the fact that I felt they weren't working all that great anyway.
I've already tried the diet several times and failed. Longest I've lasted so far is 6 weeks. I'm going to have another crack at it in a few weeks time and try my best to reach 3 - 6 months. Unfortunately food is my kryptonite and a big part of my comfort zone. Something that I thankfully still get pleasure from.
So yeh that is my story. Just thought I'd share it with you all. And figured it was time to join a CFS forum since nobody else can relate to us (how can they?).
I hope you are all doing okay considering the affliction we have to live with!
PS. How is everyone here with their sleep patterns? mine is screwed. And I've read online that it's a common thing for CFS sufferers. Is this true? I can't fix mine because every time I try to reset it, when I have really bad days I end up falling asleep and can't get to sleep until later. So I just gave up and just let my body/mind do it's thing. Now I'm up until 5am - 6am in the morning. I would like to go to bed much earlier but I just feel it's a waste of time. How does one keep a regular sleeping schedule with this affliction? it's not like you can wake up a lot earlier either because you already suffer from tiredness and I find lack of sleep just makes it a lot worse and can turn what might have been a really good day energy/mood wise into another miserable one!
Kind regards,
Matty.
I'm new here and wanted to reach out and say hello. Unfortunately I've had CFS now for more than 3 years, and am also suffering from chronic depression. The depression has improved in some ways. But everything is always a struggle now. I used to love playing video games a lot but because of CFS sometimes I just don't have the energy to play them (does anyone else get that a lot too?). Even watching TV Shows can be a struggle for me as well depending on how tired I am feeling at the time. And then I have days where I feel good, but I still don't feel like doing anything (depression). It is a vicious circle!
Sadly I've been off work now since the end of 2012 due to these conditions. It has been a very frustrating time and I'm amazed at the fact that I've already lost a friendship over it because this person completely downplayed my illness. They should never have included "Fatigue" in the title of this disease. Normal people truly have absolutely no idea what it is that we go through. And I suspect a few of my friends have their doubts about me as well and will probably think that I'm "over-reacting". One of my friends even asked me not long ago how is the job front going? because yeah, I am totally well enough to work right? /sarcasm. I swear you tell a lot of people what it is we suffer with and it goes in one ear and out the other, even with our closest friends and family. I also had another friend who I've parted ways with now (over a separate matter) who also came over one afternoon and made a comment about how he thought I'd be looking for a job already.
Sadly I've learnt to keep CFS to myself these days. Sometimes I still slip and let a few people know what exactly it is that I suffer with. But mostly I keep it completely under lock and key because I don't need to be judged by other people. What the f**k do they know right? why should I have to defend myself and put up with bullshit from people when I already feel miserable most days. Oh yeah and all the advice that comes along with telling people about your problems. Have you tried this? have you tried that? well don't you think I've already tried everything because I have a computer and internet at home and did research because I want to feel better? christ this really angers me.. anyway it is pretty sad though that I feel I have to hide my illness now. It is easier to just tell people that you feel okay or not too bad and not bother letting them know what is really going on.
My Dietician said there is a 50/50 chance the GAPS diet may fix my condition as my stomach bacteria test was one of the worst he's seen. I plan on seeing a Naturopath as well who successfully treated a friend's chronic depression. I figure I may as well give it a shot now that I'm off anti-depressants as they were giving me bad reflux (I'm still having it). Plus the fact that I felt they weren't working all that great anyway.
I've already tried the diet several times and failed. Longest I've lasted so far is 6 weeks. I'm going to have another crack at it in a few weeks time and try my best to reach 3 - 6 months. Unfortunately food is my kryptonite and a big part of my comfort zone. Something that I thankfully still get pleasure from.
So yeh that is my story. Just thought I'd share it with you all. And figured it was time to join a CFS forum since nobody else can relate to us (how can they?).
I hope you are all doing okay considering the affliction we have to live with!
PS. How is everyone here with their sleep patterns? mine is screwed. And I've read online that it's a common thing for CFS sufferers. Is this true? I can't fix mine because every time I try to reset it, when I have really bad days I end up falling asleep and can't get to sleep until later. So I just gave up and just let my body/mind do it's thing. Now I'm up until 5am - 6am in the morning. I would like to go to bed much earlier but I just feel it's a waste of time. How does one keep a regular sleeping schedule with this affliction? it's not like you can wake up a lot earlier either because you already suffer from tiredness and I find lack of sleep just makes it a lot worse and can turn what might have been a really good day energy/mood wise into another miserable one!
Kind regards,
Matty.
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