Timaca
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Here's my latest blog post on how food either kept me home bound or allowed me to be out hiking!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Diet doesn't make any difference regarding my ME/SEID, except that the wrong foods cause swelling. Eating a certain way doesn't help me at all in being more active.Here's my latest blog post on how food either kept me home bound or allowed me to be out hiking!
Having to be Home bound or Out Hiking. I choose hiking!
I can't say diet has made a huge difference for me, either. However, once I dealt with all the low-hanging fruit (pathogens, OI, thyroid, sleep problems), I started trying the 1-5% improvement things. Diet seems to be one of them for me. It may not be a major player, but every little bit helps.Diet doesn't make any difference regarding my ME/SEID, except that the wrong foods cause swelling. Eating a certain way doesn't help me at all in being more active.
Cranberries, gluten, soy.Valentijn~ What foods cause you swelling?
Yep. Until the time we figure out what is causing ME/CFS, we'll have to make do with treating symptoms and secondary issues with an eye to improving quality of life. If dietary changes are going to improve my QOL, I'm willing to try them, even though as a PWME without gut issues I haven't considered diet a big factor for me.SOC~ I totally agree that the food issues are secondary.....and I think it's due to pathogens, possibly pathogens affecting the intestinal mucsoa in some way. It would be nice to get to the bottom of what is causing the CFS and solve that for I also believe the food intolerances would go away.
Pass on the simple "recipes", too. I found your article about cooking sweet potatoes and yams very helpful. Lots of us are still trying to learn the tricks of eating simply with low-allergen foods. Gone are the days of interesting and complex meals. It's become a question of trying to find simple, but not boring meals.Regarding my blog....thanks for suggesting it to someone else. I hope they find it useful. I haven't put too many recipes up yet for I am still eating pretty simply. But, that's OK for now, it is what it is!
Pass on the simple "recipes", too. I found your article about cooking sweet potatoes and yams very helpful. Lots of us are still trying to learn the tricks of eating simply with low-allergen foods. Gone are the days of interesting and complex meals. It's become a question of trying to find simple, but not boring meals.
I'm trying to put together a book of easy ways to maintain a low-allergen diet for my soon-to-be graduated and married daughter. She'll have more than enough on her hands with mild ME, a new job, and a new marriage to deal with. A collection of simple, healthful foods would be a big help to her and her new husband.
I have known people that had good recoveries by treating sensitivities with immunotherapy which made their infections (i.e. chronic Lyme) easier to treat after they couldn't progress much by treating the "bigger" issue only.I suspect they're secondary to bigger issues and if we could get the bigger issues under control, the food sensitivities might be a non-issue.
While the antivirals certainly have helped me, the diet has also played a significant role. It's most likely the food that made me house bound most recently and the lack of those same foods which allowed me to hike....since my antivirals remained the same. Time and more experimentation will tell for sure.