http://www.actionforme.org.uk/get-involved/raise-awareness/severemetimetodeliver
Severe M.E. Time to deliver
“I have gone from a fit, healthy and active 37 year old with a job that I loved and a toddler I adored and done everything with, to being bed bound/housebound most days and completely reliant on my mum and husband should I wish to leave the house as I have to use a wheelchair. I’m about to lose my job. My daughter, who will be three in April, can’t ever remember her mummy being well. I require a great deal of help and support around the house and to help me care for my daughter. My journey so far with M.E. has been soul destroying/heartbreaking/devastating. I’d give anything to have my life back.”
That’s the reality for one woman with severe M.E., featured in
“My life stopped…” http://docs.com/@jessica.rowe.581
This new Action for M.E. report, launched at our
Severe M.E. Symposium and AGM http://www.actionforme.org.uk/get-informed/news/our-news/severe-me-symposium-and-agm-today.htm on 14 November 2014, focuses on the experiences of 298 people identifying themselves as severely affected (out of 2,081 total respondents with M.E.) who took part in Action for M.E.’s 2014 health and welfare survey.
Along with statistics from our initial
M.E. Time to deliver http://www.actionforme.org.uk/get-involved/raise-awareness/me-time-to-deliver/ report, substantial qualitative analysis has been solely undertaken by Dr Andrew Pates, for whose time and expertise we are profoundly grateful.
“My life stopped…” http://docs.com/@jessica.rowe.581 presents a stark reality of life with M.E. at its most severe, including:
- the impact on individuals, carers and families
- the social, emotional and financial cost of severe M.E.
- healthcare and welfare benefits for this most vulnerable patient group.
(Apologies that the report link takes you to another site - we are experiencing some technical difficulties with hosting the document on our own site at the moment.)