Nielk
Senior Member
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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This sounds very promising and as though the research is translating to a viable treatment much faster than expected.
Nice to have some good news today!
Yes, this is VERY exciting news. If anyone knows some way to obtain these "poop pills", please post.
Drew
i think i have ask this before, but what is so different between this and probiotics ? Fresh ? Live ? - then yogurt or kefir or Kombucha ? The amount ? The different kinds/strains ? The technique ? - antibiotics before ? fasting/clear bowels before ? What processing is done first ?
The other thing is that is seems (probably) difficult enough to get it for c. Diff, I can only imagine it to be so much more difficult and longer time to wait for other conditions like ME... I do think it has some potential. Is our problem "all in our gut"? Many times it seems there is a connection at least.
Welcome to OpenBiome.
Why we're here:
We founded OpenBiome, a nonprofit 501(c)(3) organization, after watching a friend and family member suffer through 18 months of C. difficile and 7 rounds of vancomycin before finally receiving a successful, life-changing Fecal Microbiota Transplantation (FMT). The remarkable efficacy of this treatment and the great lengths required to receive it convinced us that we needed to help expand access. After many discussions with local clinicians and the FDA, we launched OpenBiome in 2012 to make FMT faster and easier for patients and doctors alike.
What we do:
We work with clinicians to make FMT easier, cheaper, safer and more widely available. We do so by providing hospitals with screened, filtered, and frozen material ready for clinical use. This service eliminates the time, staff, protocols, and facilities needed to screen and prepare material from new donors for each treatment. With OpenBiome, all that’s needed to deliver FMT is a doctor and a colonoscope.
Well come on over. There's only this little pond between us! Actually, I wonder if it could be sent without a prescription. Perhaps there's some contacts here in the US that might be able to help you out.