When I was first diagnosed - over a decade ago now - I too lost a heck of a lot of weight. I used to be called 'Skeletor' in a friendly sort of way. But when I entered the 'chronic' phase my weight piled on. My last major relapse, some 6 years ago, resulted in similar weight loss, but again, this has been followed by weight gain.
Now I am trying to increase my exercise daily, but in a way that doesn't hit me too hard in terms of tiring me out, or elevating the symptoms. However, as
peggy-sue was I think saying, it is hard trying to fit in a short walk each day, and still maintain the 'normal' and necessary things around the house and in terms of 'work' i.e. my voluntary duties.
Quite often, something has to give. And trying to build that flexibility into any fixed programme is impossible. I can't say that a daily walk - even if I manage to sustain it over a week - has reduced the impact of said walk as time has gone by. It hasn't, but it does give me a 'buzz' from now being able to at least do it.
Is my exercise helping my weight? I honestly doubt that it is. It is too little really, even if I do 'push it' in terms of speed, but I think it is better than nothing: so long as I can a) actually manage it, and b) deal with the fall-out. And b) depends I think on how I am feeling generally.
It is very hard this management lark. Sometimes you have no choice but to go out of course - e.g. shopping for food even if my parents are able to lend a hand - but exercise for exercise's sake is a difficult activity to factor into the equation. Too many variables.