Jacque
Senior Member
- Messages
- 424
- Location
- USA - California
Daddy always taught me to keep my mouth shut if I can't say something nice... So I have been quiet here for a while on PR... Cuz I am not a Phoenix Rising...I am a Phoenix falling deeper into the abyss of poop...!
Immune system does not appear to be responding to the Rituxan. My pain levels have increased along with my Norco intake...grrrr And I have gained 6 lbs due to the INTENSE sugar cravings that have come on since starting the Rituxan. I have had a slight improvement in flu like symptoms... But all in all I am not any better and pain WORSE...ugh
Have 2 infusions to go...
I used to teach "feel the burn" when I taught aerobics... Never thought I'd have to "live the burn"...ugh
Still parked on the couch most of the time...
Soooo now we are adding Valcyte to the mix! And after reading that it is causing cancer in animals I don't know how thrilled I am about that... Is anyone else out there taking Valcyte that can put my mind to rest on that? Feel better - get Cancer... hmmmmm doesn't sound quite right...but I don't know what other options I have right now.
Soooooo many theories and so few dollars and years left to GET A LIFE!! This little Rituxan adventure will cost me close to 10k once I am done!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Between blood work, lodging, and infusion fees! Yikes... And I didn't even pay for the DRUG!
Time to RISE!!!
Immune system does not appear to be responding to the Rituxan. My pain levels have increased along with my Norco intake...grrrr And I have gained 6 lbs due to the INTENSE sugar cravings that have come on since starting the Rituxan. I have had a slight improvement in flu like symptoms... But all in all I am not any better and pain WORSE...ugh
Have 2 infusions to go...
I used to teach "feel the burn" when I taught aerobics... Never thought I'd have to "live the burn"...ugh
Still parked on the couch most of the time...
Soooo now we are adding Valcyte to the mix! And after reading that it is causing cancer in animals I don't know how thrilled I am about that... Is anyone else out there taking Valcyte that can put my mind to rest on that? Feel better - get Cancer... hmmmmm doesn't sound quite right...but I don't know what other options I have right now.
Soooooo many theories and so few dollars and years left to GET A LIFE!! This little Rituxan adventure will cost me close to 10k once I am done!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Between blood work, lodging, and infusion fees! Yikes... And I didn't even pay for the DRUG!
Time to RISE!!!