Hi, I'm new here and this is my first post! I actually haven't been diagnosed with CFS (I don't have enough symptoms) but was just diagnosed with POTS. One of my doctors decided to do some viral testing because it seemed to be viral-onset and I still have swollen lymph nodes. Well, I just got the results in the mail and am freaking out.
My HHV 6 IgG results and they are AWFUL - 66.95 and the lower limit for positive is >0.99. That's not a typo, that's 67 times the normal limit. I haven't spoken to my doctor yet so I don't know quite how bad this is but after looking through some posts on here I noticed that some people said that even 8 is quite high.
Other viral/bacterial tests have shown nothing really: My EBV and CMV titers are quite good and I tested negative for Parvo a few months ago.
My doctor wants me to start Valtrex because this all started when I contracted HSV 1 last year. Now I'm kind suspicious that it's even an issue though - I haven't even had another cold sore since my initial outbreak. (I'm sorry if that's gross!) And from what I've read, Valtrex does nothing for HHV 6 and that seems to be my biggest issue.
After getting diagnosed with POTS I felt like..okay, I know what's wrong, I have a good chance of improvement at least. But after getting this result I feel like I'm probably just going to get worse. I'm not sure what steps to take now. What other tests do I need to have done? What, if anything, are my treatment options? I know this is something I really need to discuss with my doctor but I'm terrified and would like some information before Monday.
My HHV 6 IgG results and they are AWFUL - 66.95 and the lower limit for positive is >0.99. That's not a typo, that's 67 times the normal limit. I haven't spoken to my doctor yet so I don't know quite how bad this is but after looking through some posts on here I noticed that some people said that even 8 is quite high.
Other viral/bacterial tests have shown nothing really: My EBV and CMV titers are quite good and I tested negative for Parvo a few months ago.
My doctor wants me to start Valtrex because this all started when I contracted HSV 1 last year. Now I'm kind suspicious that it's even an issue though - I haven't even had another cold sore since my initial outbreak. (I'm sorry if that's gross!) And from what I've read, Valtrex does nothing for HHV 6 and that seems to be my biggest issue.
After getting diagnosed with POTS I felt like..okay, I know what's wrong, I have a good chance of improvement at least. But after getting this result I feel like I'm probably just going to get worse. I'm not sure what steps to take now. What other tests do I need to have done? What, if anything, are my treatment options? I know this is something I really need to discuss with my doctor but I'm terrified and would like some information before Monday.