Thought this was interesting. Nice that one person sharing their story ended up helping save someone else.
http://video.today.msnbc.msn.com/today/49820065#49820065
http://video.today.msnbc.msn.com/today/49820065#49820065
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Ocean,
Thanks for bringing us this video. What a scary, yet uplifting story. They don't really talk that much about the rare illness and nothing about the treatment.
Who knows how many obscure illnesses are out there that the medical field in large is unaware of and therefore withhold possible treatments to bring resolution.
what goes on in the noggin is very very complicated and lends no end to mystery.