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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Excellent article. Thanks Cort.
Thanks. I hope people can get engaged in this topic. Getting more research funding is THE most important goal of the ME/CFS Community. Getting another RFA is, I believe, the key to do that. With the production of the State of the Knowledge Workshop the time is ripe for one. Getting one would make a big difference for the ME/CFS research.
I agree. Thanks, Cort.
Its a key problem and a key opportunity - based on the hits to this article (the lowest I can remember for a front page article) - its also not something people in this site are very interested in. You can't say there's not an opportunity here - there is - getting an RFA would be a huge opportunity for ME/CFS research but its going to take some work to get it realized. If politicians and bureacrats are not going to change the status quo - and absent another hit like XRmV - that seems very unlikely - then its up to the patients. I guess we'll just cross our fingers and hope that they do the right thing