I finally read a few web sites about diabetes insipidus (after seeing the term on these forums for a while....). On one of those sites I found this statement:
Aside from signs of dehydration and an enlarged bladder, no specific signs of DI exist.
Hmm. I happen to know that I have an enlarged bladder. In the notes from my last surgery (for removal of endometriosis tissue) there was a comment that my bladder was very large. In fact, they used the word "very" two or three times. It was almost humorous. I just figured, okay, I guess was born with an over-sized bladder.
When I first got sick I used to get up several times a night to urinate. After I started treating the NMH (lots of extra water, salt tablets, fludrocortisone and potassium--the midodrine was not added until later) I stopped getting up at night for this reason. I found it interesting that even though I was taking in more water (3 liters a day) I was going to the bathroom less often. I don't know if my 24 hour urine volume was changed that much. It's hard to tell without measuring.
Anyway, just a bit of rambling. I do wonder, however, what other things might cause an enlarged bladder? Is this proof that I have at least some mild DI or could it be from something else? I'll try to search on my own, of course, but would love to have input from others.