Look gift horses in the mouth much?
Huge thanks to anyone who donates $10 million to legitimate ME research!
Like I said, I am very grateful to them for donating so much money to ME research.
However, I will look at this gift horses mouth until this untenable situation changes.
They say in the interview that when the science changes they will change the info on their site such as endorsements of CBT/GET and links to CDC. Obviously, they are implying that the science supports CBT/GET and CDC's other misinformation and that this should and will remain on their website unless and until the 'science changes.'
The use of "Chronic Fatigue" speaks volumes to me. Their proffered explanation that it is a disease, not a syndrome is beyond ludicrous. Can we agree on that? And if so, what does that tell us about "CFI"? I am really hoping this is all just gross negligence and ignorance rather than something intentional.
All this is completely unacceptable.
An ME org can not call itself "Chronic Fatigue!" Even CAA would never even think of being that brazen! What does that tell you?
An ME org must never present CDC misinformation. To me this is "non-derogable." In international law, a norm is considered non-derogable if there can be no disagreement that it can't be violated. For example, international laws forbidding piracy, genocide and institutionalized rape are non-derogable; you can't say "yes, but in this instance it's ok because we're doing other great things."
An ME org can not be called the "Chronic Fatigue Initiative" or promote harmful CDC lies such as that GET is effective. This is non-derogable; non-negotiable!
To be clear, I am NOT urging an overall aggressive stance against the "CFI" org. But I think
when someone does these very harmful things you have to make it crystal clear that it will not stand; even if it is said out of mere gross ignorance or negligence, not with the intent to hurt. Polite, but Firm for now.