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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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These results are striking confirmation of the reality of your condition.
There is a measure which has been useful to me which I don't see mentioned, except in terms of the time spent in fetal position afterward. (Been there, done that.) Did anyone monitor the time it took your heart rate to recover to that day's baseline heart rate? A fingertip reading of O2 saturation in peripheral blood would also be interesting.
For me, at least, these are very sensitive indicators of how long the backwash from exercise will affect me. The longer they stay away from baseline readings, the longer my perceived hangover from an effort will extend. The first times are measured in minutes, the latter in days.
so sorry. When I initially wrote this, it all lined up as a graph, but I didn't check it again after posting. The first # is test one, then 2 , then the last is the % difference.
At my anaerobic threshold my HR was 133 during the first test and 113 during the second. I have been told to wear a HR monitor and to set it to alarm at 113.
I didn't post this, but my max HR was 165 during the 1st test, the 161 during the second.
hope this clarifies...
Also, I don't think it should be "post exertion". The AT is a measure found during exertion, when you move from one type of work to another, making you deplete your energy reserves, without the ability to regenerate.
THIS is CFS and for the life of me I cannot understand why this research hasn't turned the research world upside down.
How long ago did they do their paper? Five years?
This is great stuff. A recent paper did validated the Pacific Fatigue Lab's results and researchers in the CFS field are using exercise tests all the time now. I'll have a report on that paper soon.
I also think this whole approach is fascinating and potentially revolutionary in the way it shows up the real differences in ME/CFS. But wasn't the original paper a bit light on numbers, I can't remember? Glad to hear there's finally validating research on the way. As you say, this would have been a prime candidate for investing research funding.
But guess what? That's getting 100x better with antimicrobial therapy and proper detoxification.