taniaaust1
Senior Member
- Messages
- 13,054
- Location
- Sth Australia
Yes, and what I am wondering, remembering Osler's Web, if those guys that met with Rivvka (sp?) and Bob before the conference, the meeting Collins set up with cfs folks, well they said people could send in greivances etc Should we send in that concern about Fauci, because weren't they saying at that meeting that Straus and Fauci had worked on behalf of CFS? I imagine those guys don't know the history, the govmt guys at the meeting yesterday. I want to make sure Collins knows.....what I can't figure out is if its better for us to highlight the past to them or let it slide.....one thought is how sometimes its good to give people an out if you want things to change. I imagine Mikovitz knows it all and I wonder what sort of things she has told Alter etc about the past if that opp has come up or seemed pertinent, useful.
I personally do think it is a good idea to let government people etc know that we dont want the CFS/ME stuff in Fauci's hands... now's our chance to be outting those old ones who did us wrong.. and calling for new people to be dealing with us. We should be doing it now (as after all the XMRV may turn out not to be caustive and we may need some open minded ones high up on our side then). The CFS/ME community shouldnt be having to deal with closed minded ones who have ignored our desperate cries for past 10-25 years.
Guess with Lipkin.. we just will have to sit back and hope he's serious about wanting to find it and help us.