I'm very touched by what your family is going through. I think of you all every day and pray that there will be some answers soon. My daughter is severely ill, bed bound too. She also started having GI hemorhages. These, required multiple transfusions. Source of bleed determined in in the small bowel,but nothing more despite many tests scans scopes.She just came out of the hospital on Sunday with the 6 th bleed. They wanted to do exploratory surgery but we refused because she is so weak. She says she can't hang on anymore. She's getting weaker and weaker. We are in Canada and there aren't any resources here and I'm not sure what to do to get her some help. All I can do is give here a vitamin IV. But she needs more help.I'll answer this as soon as I can. He's with Whitney now, then I will be with Whitney, then somehow we have to eat, then Ron goes to bed and I'm up with Whitney, etc, and so it goes. In the morning he's gone before I wake up. Two ships in the night.