I have been ill for nearly 10 years with ME (or I was speculating recently that perhaps I just have a collection of autoimmune illnesses, principally Hashimoto's, but for now I will call it ME as I have varied symptoms). I had a relapse after whooping cough 5 years ago and have been trying very hard since then to improve my function to pre relapse days.
I am doing pretty well in the last few months I feel after researching, having tests, changing diet, adding in many supportive supplements.....digestive symptoms are on the wane after a HUGE amount of work and diet discipline. My immune dysfunction is improving - I get proper colds now, and they behave normally, and I am pretty good at sorting them out quickly. My stamina has improved a bit, but maybe not as much I think. I have been doing more, but maybe I don't have the energy I thought I had and that could be contributing to the problem I outline below.
My other main symptom is migraine aura - I don't get headache, but I can feel quite brain damaged after one, and the effects last 2 days (clumsy, foggy, a bit disorientated sometimes). I did have a spell a few years ago when I didn't get them very often, but in the last year it's been around monthly.
Now they are happening more, and I have had 3 in 2 weeks. My triggers are 1. using too much energy, 2. stomach pain, and 3. cold virus attacks. I can help prevent the first 2 but not the last one so easily. I am now experimenting with increasing some supplements I saw mentioned on the Migraine Trust site - magnesium, CoQ10, and B2/Riboflavin. I was taking all 3 but not in the amounts they mention that were used in trials. Also I am getting support from my medical herbalist, though at the moment she is not using Feverfew on me, but thinks that Cats Claw may be better for the whole system support.
Also I wondered why I am getting more of them - I even wondered if how I was previously protected me in some way and now I am in a different mode neurologically and more exposed. I am not a scientist so I don't know enough here, but I know there was some research last year into migraines, and especially the aura that showed tiny lesions on the brain and changes in the white matter. http://www.medicalnewstoday.com/articles/265345.php
I note that recent research into ME sufferer's brains also showed changes in the white matter (ie reduced) - or have I got that wrong? Is there any link here or am I barking up the wrong tree? http://forums.phoenixrising.me/index.php?threads/possible-brain-biomarker-for-me-cfs-found.33454/
I did a search for migraine aura on here, and didn't come across very much. I wondered if many other people have them, as I had thought they were pretty common in PWME. Any other thoughts on things that might help with them? I am trying to avoid medications initially, as it would be good to avoid if I can. I don't take any prescription medications at the moment other than my thyroid meds, and I take T3/liothyronine only.
I am doing pretty well in the last few months I feel after researching, having tests, changing diet, adding in many supportive supplements.....digestive symptoms are on the wane after a HUGE amount of work and diet discipline. My immune dysfunction is improving - I get proper colds now, and they behave normally, and I am pretty good at sorting them out quickly. My stamina has improved a bit, but maybe not as much I think. I have been doing more, but maybe I don't have the energy I thought I had and that could be contributing to the problem I outline below.
My other main symptom is migraine aura - I don't get headache, but I can feel quite brain damaged after one, and the effects last 2 days (clumsy, foggy, a bit disorientated sometimes). I did have a spell a few years ago when I didn't get them very often, but in the last year it's been around monthly.
Now they are happening more, and I have had 3 in 2 weeks. My triggers are 1. using too much energy, 2. stomach pain, and 3. cold virus attacks. I can help prevent the first 2 but not the last one so easily. I am now experimenting with increasing some supplements I saw mentioned on the Migraine Trust site - magnesium, CoQ10, and B2/Riboflavin. I was taking all 3 but not in the amounts they mention that were used in trials. Also I am getting support from my medical herbalist, though at the moment she is not using Feverfew on me, but thinks that Cats Claw may be better for the whole system support.
Also I wondered why I am getting more of them - I even wondered if how I was previously protected me in some way and now I am in a different mode neurologically and more exposed. I am not a scientist so I don't know enough here, but I know there was some research last year into migraines, and especially the aura that showed tiny lesions on the brain and changes in the white matter. http://www.medicalnewstoday.com/articles/265345.php
I note that recent research into ME sufferer's brains also showed changes in the white matter (ie reduced) - or have I got that wrong? Is there any link here or am I barking up the wrong tree? http://forums.phoenixrising.me/index.php?threads/possible-brain-biomarker-for-me-cfs-found.33454/
I did a search for migraine aura on here, and didn't come across very much. I wondered if many other people have them, as I had thought they were pretty common in PWME. Any other thoughts on things that might help with them? I am trying to avoid medications initially, as it would be good to avoid if I can. I don't take any prescription medications at the moment other than my thyroid meds, and I take T3/liothyronine only.