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Well, I'm back on this track again, after a long bout of eating difficulty which is still ongoing, severe weight loss (77 pounds at 5 feet), G-tube placement, and now not being able to tolerate the feedings into the stomach. I don't have any local medical support for the kind of research discussed here, so the only thing being offered right now is to convert the G tube to a G-J tube and "maybe" my jejeunum will tolerate it better than the stomach..
And that may be necessary to try, for the short term to stabilize me in the meantime. But I'm looking at the possibilities for getting more to the root of the problem, which I suspect is along the lines of Dr Chia's work.. and also Dr Van Elzakker's vagus nerve infection hypothesis, which really ties the CFS and gut symptoms together. And I do have quite an overreactive nervous system, and even had nerve injury from the G-tube surgery itself, causing nerve entrapment at the stoma. Very painful and difficult to deal with.
I was never able to get to a Quest or Labcorp lab to get Dr Chia's blood testing done, as the nearest ones are just too far from me and I'm too weak to travel. So I put that on hold. I had a phone consult with Dr Thomas Cowan in San Francisco who recommended LDN, but that has to be on hold as well, for now, because I may need to take a narcotic in the near future if I'm going to need an upper endoscopy for G-tube replacement. So I wish I had more professional support of the specialized kind I need, but my options are limited.
I do have some Equilibrant that I had started a few years ago and never really followed through with. I'm wondering if I should just start in with that, at a very small dose, given my low body weight and hypersensitivities. I was also wondering about trying liquid pine cone extract, but don't want to introduce too many things at once.
And also I happen to have an Ayurvedic/Chinese medicine herbalist who has recommended David Winston's VX Immune Support (herbal extract including elderberry and others). But I'm not sure if that's specifically good for shifting the T2-T1 balance.
I'd appreciate any thoughts on this!
And that may be necessary to try, for the short term to stabilize me in the meantime. But I'm looking at the possibilities for getting more to the root of the problem, which I suspect is along the lines of Dr Chia's work.. and also Dr Van Elzakker's vagus nerve infection hypothesis, which really ties the CFS and gut symptoms together. And I do have quite an overreactive nervous system, and even had nerve injury from the G-tube surgery itself, causing nerve entrapment at the stoma. Very painful and difficult to deal with.
I was never able to get to a Quest or Labcorp lab to get Dr Chia's blood testing done, as the nearest ones are just too far from me and I'm too weak to travel. So I put that on hold. I had a phone consult with Dr Thomas Cowan in San Francisco who recommended LDN, but that has to be on hold as well, for now, because I may need to take a narcotic in the near future if I'm going to need an upper endoscopy for G-tube replacement. So I wish I had more professional support of the specialized kind I need, but my options are limited.
I do have some Equilibrant that I had started a few years ago and never really followed through with. I'm wondering if I should just start in with that, at a very small dose, given my low body weight and hypersensitivities. I was also wondering about trying liquid pine cone extract, but don't want to introduce too many things at once.
And also I happen to have an Ayurvedic/Chinese medicine herbalist who has recommended David Winston's VX Immune Support (herbal extract including elderberry and others). But I'm not sure if that's specifically good for shifting the T2-T1 balance.
I'd appreciate any thoughts on this!