AndyPR
Senior Member
- Messages
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Don't you mean awesoME??We need a go-to media puns thread if we really want to go mainstream. That would be really -ahem - aMEzing.
Ithangyew
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Don't you mean awesoME??We need a go-to media puns thread if we really want to go mainstream. That would be really -ahem - aMEzing.
Ithangyew
Ideal really, you'd think!
Queen Mary University of London must release data from the PACE Trial, which found cognitive behavioral therapy and graded exercise helped ease symptoms of chronic fatigue syndrome. Critics say the treatments can actually harm patients. (BMJ)
After nearly four months deliberation a tribunal has dismissed an appeal.PDF) made by Queen Mary University of London (QMUL) against a requirement to release data from the PACE trial – a trial that investigated treatments for chronic fatigue syndrome. This is an important step towards the increased transparency we need for balanced analysis of clinical trials where the methodology is questionable.
The Queen Mary University of London (QMUL) has been ordered to release previously withheld data from a treatment trial under the UK Freedom of Information Act. Patients and advocates hope the ruling will lead to more rigorous critique of the trial’s controversial treatment recommendations.
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Imagine you went to your doctor with two broken legs and were told the only proven treatment was to see a psychologist and start jogging. Broken legs should not hold you back. It might hurt, but putting weight on broken bones can’t actually do you harm. You just need to get motivated
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Is that a picture of Brittany Spears? That's a new one!
She's obviously not a CFS patient, but that might be the bored-annoyed look we get when we hear PACE results being touted Excellent article.Is that a picture of Brittany Spears? That's a new one!
I love the idea of a race to find biomarkers!