• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

List of media stories on tribunal PACE data release ruling

AndyPR

Senior Member
Messages
2,516
Location
Guiding the lifeboats to safer waters.
A couple of blog posts that I don't think have been linked on PR before.

https://peterkempblog.wordpress.com...t-the-criteria-is-as-useless-as-normal-range/
Many more participants in all groups reached the threshold of ‘Improved’ for Physical Functioning (PF), than reached the threshold of ‘Improved’ for Fatigue. E.g., at 52 weeks in the CBT group 79 met the PF criteria, nearly double the number (42) that reached the Fatigue criteria. This is a problem.

and

https://peterkempblog.wordpress.com/2016/09/12/pace-trial-improvers/
Now that QMUL have provided a smidgen of data to work with, I am glad to provide readers with a chart illustrating the results of a £5 million waste of money. GET and CBT are not treatments.