Wow- it really is a different world in the USIMO it is reliable. It is fairly expensive although the prices may have gone down from when I first did the test over a year ago. And you can send the blood from anywhere in the world as far as I know.
I am also in Los Angeles like Jesse and had no problem sending the blood samples to Germany.
My doctor felt the adrenergic autoantibodies showed that I have "autoimmune POTS". My own instinct is that the muscarinic/cholinergic auto-abs cause the muscle weakness but b/c I also have the calcium autoantibody (that links w/LEMS) it is hard to know for sure.
I do not get head spins or dizziness even though this is one of the first questions that doctors ask me! I had a very low/weak pulse pressure prior to IVIG and also had hypotension in general. My issue when I stood/walked was dyspnea and if I pushed it, it led to chest pain/angina. Luckily this is much better for me now.
Wow, you got your insurance to cover the Cell Trend tests?!!! That is amazing. Since I was trying to get them to cover IVIG and Rituximab (and they did), I did not even bother with trying to get the Cell Trend tests covered and just paid for them myself.
It does not make you a candidate for Ritux but it certainly would show that you have autoimmunity. For me, the Cell Trend auto-abs combined with other autoantibodies, a positive ANA titer, etc, and then an extremely positive response to the autoimmune dose of IVIG, was all evidence that I could be a good candidate for Ritux. My doctor is using the autoimmune protocol, which is well established for RA and other autoimmune diseases, (vs. the currently experimental protocol of Fluge and Mella).
Our paediatrician won' t even do an active B12 test ! She didn' t know thatvthere was such a thing....