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Zoe Norris doesn't appear to have grasped that playing teasing games with sick people is a bad idea.
http://zoenorrisrecovered.blogspot.co.uk/2014/10/coming-back-to-mecfsand-running-away.html
"Since recovering I undertook a first aid course as a requirement of my job, it was a 3 day course for professionals to meet health and safety act requirements. It was an interesting and detailed course, well presented by a fantastic emergency nurse with years of experience in the accident and emergency hospital department. On the last day of the course he covered the cause of illness as had been found in my case....
in a first aid course and so it is indeed known about yet
still it hadn’t been investigated in all my years of illness by the NHS."
Continues:
"Unfortunately I have found that terribly, some are spreading a myth that ME/CFS is incurable. It most definitely is not. People I know personally have made full recoveries from ME/CFS, they’ve gone on to have normal and very active, busy lives even after many years of debilitating illness, without any recurrence of symptoms. I’ve also heard of others who have recovered through people I have met. Nearly everyone I speak to knows someone who has, or who has recovered from, ME/CFS.
Who is benefitting from communicating this lie that it is an incurable disease and so sufferers will never recover? Certainly not those suffering with the disease.
This seems to be a relatively new thing. While I was still unwell it was communicated that recovery is indeed possible from ME/CFS - that people do recover completely and get their full physical ability back. I was severely ill with ME/CFS for over 15 years and now hereI am fully recovered too so there you go! No need to spread the lies any more. It is completely untrue that there is no cure or effective treatment. In my case it was basic, simple and low cost BUT it took a huge amount of testing, research and a process of elimination to get to the bottom of what was actually biochemically wrong. The illness had a definite and identifiable specific underlying biochemical and physical cause which then leads to very real and awful physically disabling problems in the body.
To be truthful I am disgusted that some are spreading the rumour that ME/CFS is incurable and doing this is truly dangerous. If you have ME/CFS ignore these people completely; they have their own personal negative reasons, or possibly an agenda, for doing this and it’s not going to help anyone recover to get on with active lives again. No-one knows if any particular person can or will be cured until the relevant correct tests and treatment are obtained. In my case these were not until I went for private medical tests by accredited laboratories.
Oh, and it is most definitely not a terminal disease, let’s put that myth straight too. I was appalled to see this being falsely spread around.
Of course there may be some who don’t wish those around them to be well. There may be some who fear they will not get the same result that I did. I can understand that, I took many chances along the way. I still took them though – if I hadn’t I wouldn’t be where I am today."
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Zoe has put me right off her book already. And she has made a serious misjudgement in using teasing/taunting tactics to create interest in her book.
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