Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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do you know if it is about testing, or for further study? are they sending any more questionnaires for you to fill out? Do you know how many vials they are taking? Very exciting, hope I get a call.
All 4 tests? Someone help me here. I thought there was only PCR, culture and serology. So what is the fourth one?
UK folks: in the UK study, what tests are included? all 4, like the USA test? and in the UK study, how many folks are they testing?
remember everyone that you have to be a patient of one of only four doctors in the country! I begged them to let me in this one because of who my former doctor was, but gloria said no. She is sending me a consent form for maybe the next one.
I am happy for everyone that got in the study but sad that I was not chosen. I am curious about what they are looking for in participants.
I am happy for everyone that got in the study but sad that I was not chosen. I am curious about what they are looking for in participants.
Well I have to admit that I just emailed Judy Mikovits to ask if we Canadians dared to hope that we might be included in this upcoming study. Within 10 minutes I received these exciting words:
"Yes, we are working in Canada too and will get to you!"
It has been a l-o-n-g six months trying to wait so patiently.