Hi,
It's been a long time since I posted.
My wife's condition has only gotten worse. She can't move from the bed without help, can't even watch TV any more. All she can do is listen to talking books all day and eat a very limited range of food on repeat.
We're very very desperate for something to change.
Recently we have tried Glutathione after consulting her specialist. He mentioned it may exacerbate symptoms but to only take what she could handle.
After 5 days she began to get disturbed sleep (she already takes a cocktail of sleep drugs which we cycle to get close to enough sleep) which snowballs into joint pain, extreme light and noise sensitivity, worsening of POTS/NMH and obviously is capable of even less physical function.
We have stopped the Glutathione for now.
The same thing happened when she tried a low dose Anti-Viral (valgan) and she never recovered.
So my question is: Does this worsening of symptoms mean anything good? Like the immune system kicking in or Herx reaction? Or do you just follow instincts and steer clear of anything that makes you that much worse?
We're too wary to persevere but we will also ask her specialist but I'm interested in people's personal reactions/experiences
Thank you
It's been a long time since I posted.
My wife's condition has only gotten worse. She can't move from the bed without help, can't even watch TV any more. All she can do is listen to talking books all day and eat a very limited range of food on repeat.
We're very very desperate for something to change.
Recently we have tried Glutathione after consulting her specialist. He mentioned it may exacerbate symptoms but to only take what she could handle.
After 5 days she began to get disturbed sleep (she already takes a cocktail of sleep drugs which we cycle to get close to enough sleep) which snowballs into joint pain, extreme light and noise sensitivity, worsening of POTS/NMH and obviously is capable of even less physical function.
We have stopped the Glutathione for now.
The same thing happened when she tried a low dose Anti-Viral (valgan) and she never recovered.
So my question is: Does this worsening of symptoms mean anything good? Like the immune system kicking in or Herx reaction? Or do you just follow instincts and steer clear of anything that makes you that much worse?
We're too wary to persevere but we will also ask her specialist but I'm interested in people's personal reactions/experiences
Thank you